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Family Voices is a national nonprofit led by families and friends of children and youth with special health care needs (CYSHCN) and disabilities. We connect a network of family-led organizations across the United States that provide support to families of CYSHCN.
We promote partnership with youth and families at all levels of health care, from individual care to policy and decision-making, to improve policies and systems of care for children.
Do you have a child or teen who has special health care needs or disabilities? Find support in your local community.
¿Tiene un niño o adolescente que tiene necesidades especiales de salud o discapacidades? Haga clic aquí para buscar ayuda.
F2Fs in U.S. Territories:
F2Fs and FVAOs serving Tribal Communities:
Family Voices News
THE ADMINISTRATION: Reunification of Immigrant Families (Updated) (Washington Update August 2, 2018)
July 26 was the deadline by which all immigrant children separated from their families at the southern US border were supposed to be reunited with their families pursuant to a federal court order. There are over 2500 such children but, as of July 27, only 1500...
THE ADMINISTRATION: President Signs Bill to Delay Deadline for Electronic Visit Verification (EVV) (Washington Update August 2, 2018)
On July 30 the president signed a bill (H.R. 6042; Public Law No: 115-222) that delays for one year (until January 1, 2020) the implementation of a requirement that Medicaid agencies adopt “electronic visit verification” (EVV) for personal care services provided at...
CONGRESS: Senate Oversight Hearing on “Immigration Enforcement and Family Reunification Efforts” (Washington Update August 2, 2018)
On July 31, the Senate Judiciary Committee, chaired by Senator Chuck Grassley (R-IA), held a hearing on efforts to reunify the immigrant families separated at the southern US border. The witnesses were all administration officials. Notably, one witness -- a social...
CONGRESS: Legislation to Deem People with Developmental Disabilities (DD) a Medically Underserved Population (Washington Update August 2, 2018)
On July 26, Representatives Seth Moulton (D-MA) and Gregg Harper (R-MS) introduced the Healthcare Extension and Accessibility for Developmentally Disabled and Underserved Population (HEADs UP) Act of 2018 (H.R. 6611). This bill would declare people with developmental...
Medicaid Waiver News: State Comment Periods (Washington Update August 2, 2018)
Resources on Medicaid work requirements The National Disability Navigator Resource Collaborative (NDNRC) has compiled a bank of news and resources relating to Medicaid work-requirement waivers: Summary of Posts and Resources on Medicaid Work Requirements. A blog post...
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