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Family Voices is a national family-led organization of families and friends of children and youth with special health care needs (CYSHCN) and disabilities. We connect a network of family organizations across the United States that provide support to families of CYSHCN.
We promote partnership with families at all levels of health care–individual and policy decision-making levels—in order to improve health care services and policies for children.
Do you have a child or teen who has special health care needs or disabilities? Find support in your local community.
¿Tiene un niño o adolescente que tiene necesidades especiales de salud o discapacidades? Haga clic aquí para buscar ayuda.
F2Fs in U.S. Territories:
F2Fs and FVAOs serving Tribal Communities:
Family Voices News
THE ADMINISTRATION: President Signs Bill to Delay Deadline for Electronic Visit Verification (EVV) (Washington Update August 2, 2018)
On July 30 the president signed a bill (H.R. 6042; Public Law No: 115-222) that delays for one year (until January 1, 2020) the implementation of a requirement that Medicaid agencies adopt “electronic visit verification” (EVV) for personal care services provided at...
CONGRESS: Senate Oversight Hearing on “Immigration Enforcement and Family Reunification Efforts” (Washington Update August 2, 2018)
On July 31, the Senate Judiciary Committee, chaired by Senator Chuck Grassley (R-IA), held a hearing on efforts to reunify the immigrant families separated at the southern US border. The witnesses were all administration officials. Notably, one witness -- a social...
CONGRESS: Legislation to Deem People with Developmental Disabilities (DD) a Medically Underserved Population (Washington Update August 2, 2018)
On July 26, Representatives Seth Moulton (D-MA) and Gregg Harper (R-MS) introduced the Healthcare Extension and Accessibility for Developmentally Disabled and Underserved Population (HEADs UP) Act of 2018 (H.R. 6611). This bill would declare people with developmental...
Medicaid Waiver News: State Comment Periods (Washington Update August 2, 2018)
Resources on Medicaid work requirements The National Disability Navigator Resource Collaborative (NDNRC) has compiled a bank of news and resources relating to Medicaid work-requirement waivers: Summary of Posts and Resources on Medicaid Work Requirements. A blog post...
Medicaid Resources (Washington Update August 2, 2018)
Medicaid and CHIP Provide Health Coverage for Many School-Age Children, Yet Gaps Remain--a New Report from the Georgetown Center on Children and Families A new report from the Georgetown Center on Children and Families (CCF) -- Medicaid and CHIP Provide Health...
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