About Family Voices

Our Vision

All children, youth, and families, especially those with special health care needs and disabilities, experience their best health and quality of life.

Our Mission

Family Voices is a family-led organization that transforms systems of care to work better for all children and youth, especially those with special health care needs or disabilities. By putting families at the forefront and centering their leadership and lived expertise, we build a culture that includes everyone and fosters equitable outcomes.

Our Values

  • Our power as change agents, partners, and experts on our lives.
  • A health justice approach to achieve health equity.
  • Family- and person-centered care.
  • The priority of our dignity, autonomy, and well-being.
  • Including all of us equitably across race, ethnicity, class, culture, language, religion, disability, gender, sexual orientation, geographical location, and other characteristics.
  • Our meaningful engagement in decision-making and advocacy.
  • Authentic partnership and close collaboration across generations, communities, organizations, systems of care, and governments.

Our Strategic Goals (2024-2028)

  • Support youth, families and family-serving organizations to define and address systemic barriers and biases impacting the quality of life and well-being for CYSCHN and their families.
  • Advance equity by reducing systemic barriers including ableism, racism, and other forms of discrimination that improve quality of life and well-being for CYSHCN and their families.
  • Enable and promote innovation within Family Voices and our work to improve the lives of CYSHCN.
  • Secure diverse funding to enhance program work, policy efforts, and organizational evaluation.

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Our Vision

With families at the center of health care, all children and youth reach their full potential and health disparities are eliminated.

Our Mission

Family Voices is a national organization and grassroots network of families and friends of children and youth with special health care needs and disabilities that promotes partnership with families—including those of cultural, linguistic and geographic diversity—in order to improve health care services and policies for children.

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