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Family Voices is a national family-led organization of families and friends of children and youth with special health care needs (CYSHCN) and disabilities. We connect a network of family organizations across the United States that provide support to families of CYSHCN.
We promote partnership with families at all levels of health care–individual and policy decision-making levels—in order to improve health care services and policies for children.
Do you have a child or teen who has special health care needs or disabilities? Find support in your local community.
¿Tiene un niño o adolescente que tiene necesidades especiales de salud o discapacidades? Haga clic aquí para buscar ayuda.
F2Fs in U.S. Territories:
F2Fs and FVAOs serving Tribal Communities:
Family Voices News
Infographic: Financial Hardship in Families Raising CYSHCN (Washington Update August 2, 2018)
The Catalyst Center has developed a one-page infographic to illustrate elements of financial hardship for families who have children and youth with special health care needs (CYSHCN). Resources about family financial hardship are listed at the bottom of the...
Your Input Sought/Of Possible Interest (Washington Update August 2, 2018)
YOUR INPUT SOUGHT NEW CMS Tribal LTSS Program Survey This survey is being conducted by the Centers for Medicare and Medicaid Services (CMS) to help them develop a list of tribally operated long-term services and supports (LTSS) programs across Indian Country. The...
Upcoming Webinars from the Field (Washington Update July 25, 2018)
NEW Managed Long-Term Services and Supports (MLTSS) for People with Intellectual and Developmental Disabilities: Strategies for Success Wednesday, July 25, 12:30 pm-1:30 pm ET National Association of States United for Aging and Disabilities (NASUAD) Ticket to Work...
The Administration: Reunification of Immigrant Families (Updated) (Washington Update July 25, 2018)
As reported in last week’s Update a federal court ordered that children under age five be reunited with their families by July 10, and that all other children be reunited with their families by July 26. The administration did not meet the first deadline; only about...
Congress: Electronic Visit Verification (EVV) Legislation Ready for President’s Signature (Washington Update July 25, 2018)
On July 17, the Senate approved a House-passed bill to delay for one year (until January 1, 2020) the implementation of a requirement that Medicaid agencies adopt “electronic visit verification” (EVV) for personal care services provided at an individual’s home. The...
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