Banner with the photos of families and children and the Family Voices tagline, Keeping families at the center of children's health care

Family Voices is a national family-led organization of families and friends of children and youth with special health care needs (CYSHCN) and disabilities.  We connect a network of family organizations across the United States that provide support to families of CYSHCN. 

We promote partnership with families at all levels of health care–individual and policy decision-making levels—in order to improve health care services and policies for children.

Do you have a child or teen who has special health care needs or disabilities? Find support in your local community.

¿Tiene un niño o adolescente que tiene necesidades especiales de salud o discapacidades? Haga clic aquí para buscar ayuda.

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Family Voices News

Continuing Resolution

As December 20 approaches, Congress is faced with a deadline to agree on a budget or pass a continuing resolution (CR) to keep the government running. With a change in presidential leadership, it is more than likely Congress will decide on a CR. This would temporarily fund the government into early 2025.

Office for Civil Rights – Letter on Civil Rights Language Access Requirements

On December 5, the Office for Civil Rights (OCR) released a “Dear Colleague” letter to help providers and other better understand their responsibilities under Section 1557 of the Affordable Care Act (“Section 1557”). According to recent census data, nearly 68 million people in the United States speak a language other than English at home. Having access to language assistance is critical to achieving equity in health care.  

Family Voices Launches Free Online Language Access Course

My Language, My Care helps families learn more about language access. By the end of the course, participants will understand their rights under the law, know more about interpreter confidentiality, and have the tools to advocate for high quality language access services in the health care setting.

What is a lame duck session?

The lame duck session is any meeting of the House of Representatives or Senate that takes place after a November election and before the new Congress starts their new session. This also applies to presidents and other lawmakers who are retiring or did not win their...

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Our Vision

All children, youth, and families, especially those with special health care needs and disabilities, experience their best health and quality of life.

Our Mission

Family Voices is a family-led organization that transforms systems of care to work better for all children and youth, especially those with special health care needs or disabilities. By putting families at the forefront and centering their leadership and lived expertise, we build a culture that includes everyone and fosters equitable outcomes.

Donate by mail

To donate by mail, your check payable to Family Voices can be mailed to us at:
Family Voices
561 Virginia Rd.
Bldg. 4, Suite 300
Concord, MA 01742

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