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Family Voices is a national family-led organization of families and friends of children and youth with special health care needs (CYSHCN) and disabilities. We connect a network of family organizations across the United States that provide support to families of CYSHCN.
We promote partnership with families at all levels of health care–individual and policy decision-making levels—in order to improve health care services and policies for children.
Do you have a child or teen who has special health care needs or disabilities? Find support in your local community.
¿Tiene un niño o adolescente que tiene necesidades especiales de salud o discapacidades? Haga clic aquí para buscar ayuda.
F2Fs in U.S. Territories:
F2Fs and FVAOs serving Tribal Communities:
Family Voices News
AMCHP is Partnering with Family Voices for National Coordinating Center on Transition
The Project, which started on September 1, 2024, aims to develop and advance national, state, and local/community frameworks that support a successful transition from child to adult serving systems for youth with autism and/or epilepsy who have complex health and...
Two Pioneers Honored for Lifetime Achievements in Helping Children with Medical Complexity
The Maternal and Child Health Bureau’s Children and Youth with Special Health Care Needs Research Network (CYSHCNet) is pleased to announce Nora Wells and John Gordon as the 2024 recipients of The Pediatric Complex Care Lifetime Achievement Award.
Questions and Car Rides: The Journey of a Family Leader
by Coralaidee Jimenez Burgos, Family Representative with The Puerto Rico Department of Health Welcoming Felix When Felix was born, my soul was filled with joy, a love so strong it’s hard to describe. He was my lifelong dream come true. But my joy was short-lived;...
Meet Your F2F: Mississippi
Families as Allies was established in Mississippi in 1992 as the state chapter of the National Federation of Families and the only statewide organization run by and for families of children with mental health challenges. We support each other and work together to make...
New Report on Equitable Language Access in the Health Care Setting
Greater use and better quality of language access services in the health care setting can help children and youth with special health care needs experience better health outcomes. Family Voices completed an environmental scan, with the participation of over 600...
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