Projects / National Health Care Transition Resource Center
Project Overview
amily Voices is proud to have been awarded a five-year contract from The Department of Health and Human Services, Administration for Community Living, to empower youth and young adults with intellectual and developmental disabilities to manage their health care transition.
Family Voices leads this project, in partnership with Got Transition, SPAN NJ, University of Missouri Kansas City, and the Waisman Center, to empower youth and young adults ages 12-26 with ID/DD, and their caregivers and families, to manage health care transition with no reduction in quality of care or gaps in service.
This project is creating the youth-driven Center for Transition to Adult Health Care for Youth with Disabilities, a national health care transition resource center for youth and young adults with ID/DD to direct their own transition from pediatric to adult models of care. Learn more and find resources for youth, families and health care professionals at movingtoadulthealthcare.org.
This project is supported by the Administration for Community Living (ACL), U.S. Department of Health and Human Services (HHS) as part of a financial assistance award totaling $2,425,000 with 100 percent funding by ACL/HHS. The contents are those of the author(s) and do not necessarily represent the official views of, nor an endorsement, by ACL/HHS, or the U.S. Government.
For more information, contact:
Allysa Ware, Ph.D., MSW
Primary Investigator
anware@familyvoices.org
240-499-5678
Related Projects
Meeting Health Care Transition (HCT) Needs of Youth with ID/DD Who Have Been in Detention
Funded by the WITH Foundation (September 2022 – August 2023)
Advancing the Quality of Health Care Transition for Black Autistic Adolescent Girls
Funded by the WITH Foundation (March 2023 – February 2024)
News
Reflecting on Health Care Transition
Now that I am leaving the Youth Steering Committee, I will miss this community, but I know that each of you will continue to fight for people like us, to be treated equally and fairly when we need healthcare.
New Data Profile on Health Care Transition for Youth with Intellectual and Developmental Disabilities
The Center for Transition to Adult Health Care for Youth with Disabilities is in its third year of work to empower youth to lead their own transition to adult health care. One of the key products from the second year of the project was an updated data profile,...
First Year of the National Health Care Transition Resource Center
Family Voices is the lead organization in ACL’s grant for Empowering Youth with Intellectual and Developmental Disabilities to Manage their Healthcare Transitions. We are developing a national resource center where youth, families and health care providers can find...
Data Profile on Health Care Transition for Youth with ID/DD
One of the key products from the first year of the project was a data profile, completed by our partners at Got Transition, of what we know about youth with intellectual and developmental disabilities and their transition to adult health care.
Transition of Care for Children with Disabilities: How You Can Advocate for Your Child
A recent blog post published in the AAP Journals Blog, authored by Family Voices Program Manager Nikki Montgomery, explores "Transition of Care for Children with Disabilities: How You Can Advocate for Your Child." Read the full blog post on aap.org
National Healthcare Transition Resource Center for Youth with Intellectual and Developmental Disabilities Funded to Bring Needed Transition Services to Youth and Young Adults
Lexington, MA (September 30, 2021) — Family Voices is pleased to announce that we have received a new five-year funding award from the U.S. Department of Health and Human Services, Administration for Community Living, to support a National Healthcare Transition...
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