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Family Voices is a national family-led organization of families and friends of children and youth with special health care needs (CYSHCN) and disabilities. We connect a network of family organizations across the United States that provide support to families of CYSHCN.
We promote partnership with families at all levels of health care–individual and policy decision-making levels—in order to improve health care services and policies for children.
Do you have a child or teen who has special health care needs or disabilities? Find support in your local community.
¿Tiene un niño o adolescente que tiene necesidades especiales de salud o discapacidades? Haga clic aquí para buscar ayuda.
F2Fs in U.S. Territories:
F2Fs and FVAOs serving Tribal Communities:
Family Voices News
FEDVIP is Coming: Get to Know Dental and Vision Plans Today (Washington Update July 25, 2018)
FEDVIP is Coming: Get to Know Dental and Vision Plans Today (TRICARE Benefit Update, 7/17/18)
HHS Working Group on Drug Importation (Washington Update July 25, 2018)
On July 19, the Department of Health and Human Services (HHS) announced that Secretary Alex Azar requested FDA Commissioner Scott Gottlieb to establish a working group to examine how to safely import prescription drugs from other countries in the event of a dramatic...
HRSA Challenge to Improve Care Coordination for CSHCN through Tech Innovations (Washington Update July 25, 2018)
In August, the Health Resources and Services Administration (HRSA) will launch the Care Coordination for CSHCN Challenge – a competition intended to encourage the creation of tech innovations to help families and case managers with the care and coordination of...
MACPAC Report on Children and Youth with Special Health Care Needs (Washington Update July 25, 2018)
The congressionally-created Medicaid and CHIP Payment and Access Commission (MACPAC), just completed an issue brief -- Access in Brief: Children and Youth with Special Health Care Needs—which compares the characteristics of children and youth with special health care...
Your Input Sought/Of Possible Interest (Washington Update July 25, 2018)
YOUR INPUT SOUGHT NEW CMS Tribal LTSS Program Survey This survey is being conducted by the Centers for Medicare and Medicaid Services (CMS) to help them develop a list of tribally operated long-term services and supports (LTSS) programs across Indian Country. The...
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