Thank you for helping to keep families
at the center of children’s health care!

Family Voices is a national family-led organization of families and friends of children and youth with special health care needs (CYSHCN) and disabilities.  We connect a network of family organizations across the United States that provide support to families of CYSHCN.  We promote partnership with families at all levels of health care–individual and policy decision-making levels—in order to improve health care services and policies for children.

Do you have a child or teen who has special health care needs or disabilities? Click here to find help.

¿Tiene un niño o adolescente que tiene necesidades especiales de salud o discapacidades? Haga clic aquí para buscar ayuda.

Find a Family-to-Family Health Information Center (F2F) or Family Voices Affiliate Organization (FVAO)

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Upcoming and Recent Events

June 8, 2021

2021 Family Voices Leadership Conference - 06/08/2021 - 06/15/2021 12:00 pm - 5:30 pm ET

April 20, 2021

Webinar | CARES Act Telehealth Project: Materials for Youth, by Youth - 04/20/2021 4:00 pm - 5:00 pm ET

January 27, 2021

Family Voices Telehealth Curriculum Launch - 01/27/2021 3:00 pm - 4:00 pm ET

June 24, 2020

Black Lives Matter: Listening to, Discussing, and Addressing the Needs of Black Children and Families (virtual town hall) - 06/24/2020 3:00 pm - 4:00 pm ET

April 21, 2020

2020 Virtual Family Engagement Convening - 04/21/2020 - 05/19/2020 All Day ET View All Events





2019 Family Voices Leadership Conference

Thanks to all participants!

May 8-10, 2019 | Washington, D.C.

Click here for details

Family Voices News

Washington Update, December 19, 2019

BREAKING NEWS: A federal court of appeals has ruled on the case challenging the constitutionality of the Affordable Care Act (ACA), Texas v. United States. Key protections of the law remain in place pending further court action. See “ACA” section in this week's...

Washington Update, December 11, 2019

This week Members of Congress unveiled several bills that could affect families of children and youth with special health care needs. A conference agreement on the defense authorization bill would provide paid parental leave to all federal employees. This bill is...

Washington Update December 4, 2019

Congress is struggling to agree on funding for the federal government beyond December 20, when the temporary funding measure expires. It is unclear whether there will be resolution on legislation to address the thorny issues of surprise medical billing and...

Washington Update, November 20, 2019

Congress is still working away on FY 2020 appropriations, and legislation to address surprise medical billing and prescription drug prices. Meanwhile, the Centers for Medicare and Medicaid Services (CMS) has been very busy. The agency released a significant proposed...

Washington Update, October 31, 2019

Not all cooperation between the political parties has ceased in DC. During recent days, the House passed five health bills applauded by both Democrats and Republicans. These bills address the pediatric health care workforce, the nursing workforce, and palliative care....

Thank you for helping to keep families
at the center of children’s health care!