
Family Voices is a national family-led organization of families and friends of children and youth with special health care needs (CYSHCN) and disabilities. We connect a network of family organizations across the United States that provide support to families of CYSHCN. We promote partnership with families at all levels of health care–individual and policy decision-making levels—in order to improve health care services and policies for children.
Do you have a child or teen who has special health care needs or disabilities? Click here to find help.
¿Tiene un niño o adolescente que tiene necesidades especiales de salud o discapacidades? Haga clic aquí para buscar ayuda.
Find a Family-to-Family Health Information Center (F2F) or Family Voices Affiliate Organization (FVAO)
F2Fs in U.S. Territories:
F2Fs and FVAOs serving Tribal Communities:
Family Voices News
Washington Update November 10, 2021
Much negotiation continues on the details of the reconciliation bill. Last week saw several things being added to or taken away from the framework. Paid Medical leave is back in! Although it is only for 4 weeks total (initial proposal was 12 weeks), it is back in...
Cara Coleman, Family Voices’ Director of Public Policy and Advocacy, Receives Notre Dame Distinguished Service Award
On October 29, 2021, Cara Coleman (JD, MPH), Family Voices’ Director of Public Policy and Advocacy, was publicly celebrated in a series of University-sponsored private and public events—including one event before an audience of 80,000—as the current recipient of the...
Washington Update November 3, 2021
We have a framework! Last week the White House released the Build Back Better framework for reconciliation. Notably, the framework includes an invitation to share how the Build Back Better plan will affect CYSHCN and families. Take a look at it, and scroll to the...
Should my child get a coronavirus vaccine? Is it safe? Here’s what you should know. (Washington Post)
With millions of U.S. children eligible to receive a coronavirus vaccine, many health experts are urging parents and guardians to immunize their children — especially since the highly transmissible delta variant is the dominant strain in the United States. Read more...
Asesores de FDA recomiendan autorizar la vacuna Covid de Pfizer para niños de 5 a 11 años (La Opinion)
El paso siguiente es el de la decisión de la FDA sobre el uso de emergencia de la vacuna Covid-19 de Pfizer en niños de 5 a 11 años y se espera para el 1 de noviembre Leer más aquí.
Thank you for helping to keep families
at the center of children’s health care!