Banner with the photos of families and children and the Family Voices tagline, Keeping families at the center of children's health care

Family Voices is a national nonprofit led by families and friends of children and youth with special health care needs (CYSHCN) and disabilities.  We connect a network of family-led organizations across the United States that provide support to families of CYSHCN.

We promote partnership with youth and families at all levels of health care, from individual care to policy and decision-making, to improve policies and systems of care for children.

Do you have a child or teen who has special health care needs or disabilities? Find support in your local community.

¿Tiene un niño o adolescente que tiene necesidades especiales de salud o discapacidades? Haga clic aquí para buscar ayuda.

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Family Voices News

Washington Update, February 13, 2020

In the Update this week: The president released his proposed FY 2021 budget. It proposes significant cuts to Medicaid and some other health programs, but is considered “dead on arrival” in Congress. A House committee approved another version of legislation to address...

Washington Update, February 5, 2020

There are two big healthcare news items this week, both generated by the Centers for Medicare and Medicaid Services (CMS): CMS issued its long-expected Medicaid “block grant” guidance, outlining how states can obtain waivers to gain greater flexibility in their...

Washington Update, January 29, 2020

There are two big news items in the health policy world this week: The Supreme Court lifted an injunction that had been stopping implementation of the administration’s “public charge” rule, but only while appeals are pending. The Centers for Medicare and Medicaid...

Washington Update, January 23, 2020

The big news in the health policy world this week was the announcement by the Supreme Court that it will not take up, on an expedited basis, the case challenging the constitutionality of the Affordable Care Act. The Court has not yet decided whether to hear the case...

Washington Update January 16, 2020

It has been fairly quiet in the health policy world this week, but there are a number of good webinars coming up and several opportunities for submitting public comments on significant proposed rules, nominations, and Medicaid waivers, as well as concerns and ideas...

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Our Vision

All children, youth, and families, especially those with special health care needs and disabilities, experience their best health and quality of life.

Our Mission

Family Voices is a family-led organization that transforms systems of care to work better for all children and youth, especially those with special health care needs or disabilities. By putting families at the forefront and centering their leadership and lived expertise, we build a culture that includes everyone and fosters equitable outcomes.

Donate by mail

To donate by mail, your check payable to Family Voices can be mailed to us at:
Family Voices
561 Virginia Rd.
Bldg. 4, Suite 300
Concord, MA 01742

In honor of
The Close the Gap campaign is funded by Dr. David Nichols and Mayme Boyd.
Visit familyvoices.org/closethegap to learn more.