Family Voices Affiliate Organizations (FVAOs)


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What is a Family Voices Affiliate Organization?

A Family Voices Affiliate Organization (FVAO) is a statewide/territory-wide/tribal, parent/family-led non-profit organization, with a Board composed of a majority of family members of CYSHCN, that meets the requirements of an FVAO and works to advance the mission, vision, and principles of Family Voices.  FVAOs are a critical part of our collective effort to keep families at the center of children’s health care.

There is an FVAO in most states, and only one FVAO is approved per state.  In many cases, the FVAO is the same organization that serves as the Family-to-Family Health Information Center (F2F) in that state, though not in all cases.

FVAOs stay connected through a listserv, national meetings, monthly national calls, and quarterly regional calls.  The affiliate network works with the Family Voices policy team to inform our policy work and take collective action.

If your organization is interested in becoming a Family Voices affiliate, please contact Ian Whitney for more information and an application.

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Our Vision

With families at the center of health care, all children and youth reach their full potential and health disparities are eliminated.

Our Mission

Family Voices is a national organization and grassroots network of families and friends of children and youth with special health care needs and disabilities that promotes partnership with families—including those of cultural, linguistic and geographic diversity—in order to improve health care services and policies for children.

In honor of