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Family Voices is a national family-led organization of families and friends of children and youth with special health care needs (CYSHCN) and disabilities. We connect a network of family organizations across the United States that provide support to families of CYSHCN.
We promote partnership with families at all levels of health care–individual and policy decision-making levels—in order to improve health care services and policies for children.
Do you have a child or teen who has special health care needs or disabilities? Find support in your local community.
¿Tiene un niño o adolescente que tiene necesidades especiales de salud o discapacidades? Haga clic aquí para buscar ayuda.
F2Fs in U.S. Territories:
F2Fs and FVAOs serving Tribal Communities:
Family Voices News
Medicaid News, Information, and Resources (Washington Update, March 14, 2019)
Medicaid Waivers Several states (MS, OK, SD, TN) have requested Medicaid waivers to establish “community engagement” (work, school) requirements on extremely low-income parents/caretakers of children on Medicaid. On March 6, over 50 healthcare organizations sent a...
Affordable Care Act (Washington Update, March 14, 2019)
Ask KFF: Karen Pollitz Answers 3 Questions on Why Insurers Deny Claims (Kaiser Family Foundation, 3/6/19) Shopping for a Short-Term Plan? The Information You Get about it Will Depend on Your State (blog of the Georgetown Center on Health Insurance Reform, 3/7/19)...
TRICARE (Washington Update, March 14, 2019)
What is a TRICARE Qualifying Life Event? (TRICARE Benefit Update, 3/7/19) WORTH REPEATING: Everything You Need to Know about Filing Medical Claims (TRICARE Benefits Update, 3/1/19)
Other News, Information, and Resources (Washington Update, March 14, 2019)
From the Agencies Substance Abuse and Mental Health Services Administration (SAMHSA): DTAC Bulletin: Disaster Planning and Preparedness and People with Serious Mental Illness Department of Health and Human Services Office of Minority Health: The report State and...
Your Input Sought/Of Possible Interest (Washington Update, March 14, 2019)
YOUR INPUT SOUGHT NEW Survey to Improve Caregiver Hospital Experience The Massachusetts Institute of Technology (MIT) is analyzing the hospital visitor experience. If you are someone in the United States that has either visited a loved one in a hospital OR identifies...
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