Banner with the photos of families and children and the Family Voices tagline, Keeping families at the center of children's health care

Family Voices is a national family-led organization of families and friends of children and youth with special health care needs (CYSHCN) and disabilities.  We connect a network of family organizations across the United States that provide support to families of CYSHCN. 

We promote partnership with families at all levels of health care–individual and policy decision-making levels—in order to improve health care services and policies for children.

Do you have a child or teen who has special health care needs or disabilities? Find support in your local community.

¿Tiene un niño o adolescente que tiene necesidades especiales de salud o discapacidades? Haga clic aquí para buscar ayuda.

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Family Voices News

Family Voices Launches Free Online Language Access Course

My Language, My Care helps families learn more about language access. By the end of the course, participants will understand their rights under the law, know more about interpreter confidentiality, and have the tools to advocate for high quality language access services in the health care setting.

What is a lame duck session?

The lame duck session is any meeting of the House of Representatives or Senate that takes place after a November election and before the new Congress starts their new session. This also applies to presidents and other lawmakers who are retiring or did not win their...

NIH Strategic Plan for Disability Research

The National Institutes of Health is in the first stage of developing an agency-wide NIH Strategic Plan for Disability Research. The strategic plan will identify scientific themes and develop operational goals and objectives to advance research activities that promote...

Prenatal-to-3 State Policy Roadmap

Check out the newly released 2024 Prenatal-to-3 State Policy Roadmap. The Roadmap provides a summary of state progress on the following 12 recommended policies and strategies. In addition, the Roadmap provides details on the impact of each recommendation, how to...

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Our Vision

With families at the center of health care, all children and youth reach their full potential and health disparities are eliminated.

Our Mission

Family Voices is a national organization and grassroots network of families and friends of children and youth with special health care needs and disabilities that promotes partnership with families—including those of cultural, linguistic and geographic diversity—in order to improve health care services and policies for children.

In honor of