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Family Voices is a national nonprofit led by families and friends of children and youth with special health care needs (CYSHCN) and disabilities. We connect a network of family-led organizations across the United States that provide support to families of CYSHCN.
We promote partnership with youth and families at all levels of health care, from individual care to policy and decision-making, to improve policies and systems of care for children.
Do you have a child or teen who has special health care needs or disabilities? Find support in your local community.
¿Tiene un niño o adolescente que tiene necesidades especiales de salud o discapacidades? Haga clic aquí para buscar ayuda.
F2Fs in U.S. Territories:
F2Fs and FVAOs serving Tribal Communities:
Family Voices News
Upcoming Policy and Health Events List – April 2025
April 28, 2025 @ 1pm ET – Register for Investing in Population Health: Groundbreaking Innovation from Covered California. Join Manatt Health and Covered California for an interactive webinar to learn more about the newly launched Population Health Investments (PopHI)...
Updates on Budget Resolution and Reconciliation – April 2025
Congress is finishing up its two-week recess after successfully adopting the budget resolution which contained President Donald Trump’s legislative priorities on tax, border, energy, and more. The resolution still requires the Energy and Commerce committee (E&C)...
Department of Health and Human Services Restructuring
On Thursday, March 27, the Trump Administration announced a major restructuring of the Department of Health and Human Services (HHS). The plan would reduce the total HHS workforce by 20,000 people. The restructuring would also reduce the number of divisions of HHS...
1115 Waiver Amendments – April 2025 Update: Open Comment Periods
Learn more about proposed Medicaid 1115 Waiver Amendments for Arizona, Ohio, and Georgia. For more information, reach out to Wesley at publicpolicy@familyvoices.org. Arizona – Arizona’s proposed 1115 waiver amendments include adding work reporting requirements, time...
Medicaid Covers Nearly Half of All Children with Special Health Care Needs. Funding Cuts Could Terminate Their Access to Care.
Nearly 14 million children in the U.S. have special health care needs — and almost half of them have Medicaid. Medicaid is health coverage that covers a range of basic primary care and specialized health services that help children with complex and chronic needs or...
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