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Family Voices is a national nonprofit led by families and friends of children and youth with special health care needs (CYSHCN) and disabilities. We connect a network of family-led organizations across the United States that provide support to families of CYSHCN.
We promote partnership with youth and families at all levels of health care, from individual care to policy and decision-making, to improve policies and systems of care for children.
Do you have a child or teen who has special health care needs or disabilities? Find support in your local community.
¿Tiene un niño o adolescente que tiene necesidades especiales de salud o discapacidades? Haga clic aquí para buscar ayuda.
F2Fs in U.S. Territories:
F2Fs and FVAOs serving Tribal Communities:
Family Voices News
Medicaid 1115 Waiver Updates for March 2025
Arizona – Arizona’s proposed 1115 waiver amendments include adding work reporting requirements, time limits to Medicaid coverage, and co-payments for non-emergency uses of ambulance transport or the emergency department (ED). Work reporting requirements would apply to...
Understanding Medicaid Proposed Changes: Key Terms & Phrases
It is important to understand the various Medicaid terms that are being used and how they may impact state Medicaid implementation. The guide below defines commonly used terms and phrases and how changes could affect children and youth with special care needs in the...
Policy Talking Points: Vaccine Confidence
Background The prevalence of autism is estimated to be 1 in 36 children, based on monitoring by the Centers for Disease Control (CDC)’s Autism and Developmental Disabilities Monitoring Network. Increases in the observed prevalence of autism over the past several...
Honoring the Legacy and Generosity of Julie Beckett
Julie Beckett passed away on Friday, May 13, 2022 at her home in Cedar Rapids, Iowa. Julie was a passionate and visionary advocate for improving health care for children with special health care needs and disabilities for over 35 years, beginning with her daughter...
Health and Human Services Campaign to Promote the Maternal Mental Health Hotline (1-833-TLC-MAMA)
Mental health conditions are the leading cause of pregnancy-related deaths, more than 80% of which are preventable. The National Maternal Mental Health Hotline (1-833-TLC-MAMA) provides a safe space for pregnant women and new moms to get emotional and mental health...
Encourage confidence to act