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Family Voices is a national family-led organization of families and friends of children and youth with special health care needs (CYSHCN) and disabilities. We connect a network of family organizations across the United States that provide support to families of CYSHCN.
We promote partnership with families at all levels of health care–individual and policy decision-making levels—in order to improve health care services and policies for children.
Do you have a child or teen who has special health care needs or disabilities? Find support in your local community.
¿Tiene un niño o adolescente que tiene necesidades especiales de salud o discapacidades? Haga clic aquí para buscar ayuda.
F2Fs in U.S. Territories:
F2Fs and FVAOs serving Tribal Communities:
Family Voices News
Washington Update September 27, 2023
All eyes, ears, and efforts in both chambers of Congress will be focused on the federal budget. It expires on 9/30/23- and agreement to pass appropriation bills and/or a temporary continuing resolution appear nowhere in sight. Read the full newsletter here
Community Code of Kindness
Family Voices is excited to share a new position statement that was created in collaboration with several other organizations. The organizations included in this statement helped to create and adopt the attached collaborative interactions for our national...
Washington Update September 21, 2023
The September 30th deadline for passing a budget is looming, and no agreement is in sight. This memo gives an overview of what HHS programs would be affected by a government shutdown. Those with mandatory funding, such as the F2Fs, would not be affected. Read the full...
New Data Profile on Health Care Transition for Youth with Intellectual and Developmental Disabilities
The Center for Transition to Adult Health Care for Youth with Disabilities is in its third year of work to empower youth to lead their own transition to adult health care. One of the key products from the second year of the project was an updated data profile,...
Washington Update September 15, 2023
Both the Senate and the House are back in Washington, DC. The budget will be top of mind, along with plenty of other work and discussions. Drug Shortages: On July 28, 2023, House Energy and Commerce Committee Chair Cathy McMorris Rodgers unveiled a draft bill intended...
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