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Family Voices is a national family-led organization of families and friends of children and youth with special health care needs (CYSHCN) and disabilities. We connect a network of family organizations across the United States that provide support to families of CYSHCN.
We promote partnership with families at all levels of health care–individual and policy decision-making levels—in order to improve health care services and policies for children.
Do you have a child or teen who has special health care needs or disabilities? Find support in your local community.
¿Tiene un niño o adolescente que tiene necesidades especiales de salud o discapacidades? Haga clic aquí para buscar ayuda.
F2Fs in U.S. Territories:
F2Fs and FVAOs serving Tribal Communities:
Family Voices News
Congress: Immigration Legislation
On June 27 the House voted on immigration legislation that would have provided funding for a border wall, addressed the separation of immigrant families, and provided a path to citizenship for the so-called DREAMers (young adults who were brought to the country...
Congress: Opioid Legislation
On June 21, the House approved the Substance Use-Disorder Prevention that Promotes Opioid Recovery and Treatment or for Patients and Communities Act – or SUPPORT for Patients and Communities Act (H.R. 6) – which consolidated multiple previously passed bills. See...
Congress: Maternal and Child Health Legislation
On June 26, the Senate Committee on Health, Education, Labor and Pensions (HELP) approved two bills intended to improve maternal and child health. The Maternal Health Accountability Act (S. 1112) would establish a new grant program administered by CDC to provide...
Congress: FY 2019 Appropriations
Update: The Senate Appropriations Subcommittee on Labor, HHS, and Education approved its version of the bill to fund those agencies in FY 2019, and the full committee approved the bill the next day. (See the committee report.) As reported in last week’s Update, the...
CMS Guidance on Medicaid Coverage of Drugs Approved by the FDA under Its “Accelerated Approval Pathway”
On June 27, the Centers for Medicare & Medicaid Services (CMS), Center for Medicaid and CHIP Services (CMCS) released guidance to states through State Release #185, titled State Medicaid Coverage of Drugs Approved by the FDA under Accelerated Approval Pathway. The...
Encourage confidence to act