On July 30 the president signed a bill (H.R. 6042;  Public Law No: 115-222) that delays for one year (until January 1, 2020) the implementation of a requirement that Medicaid agencies adopt “electronic visit verification” (EVV) for personal care services provided at an individual’s home. The legislation also includes language to express a “sense of Congress” that the Centers for Medicare and Medicaid Services (CMS) should hold at least one public meeting in 2018 to solicit stakeholder feedback on its May 2018 guidance on EVV, and should continue to communicate with stakeholders, including family caregivers, during EVV implementation. Disability advocates had sought this legislation because of concerns that EVV has the potential to invade the privacy of people with disabilities, limit their independence and community access, and lead to cuts in services.

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Our Vision

With families at the center of health care, all children and youth reach their full potential and health disparities are eliminated.

Our Mission

Family Voices is a national organization and grassroots network of families and friends of children and youth with special health care needs and disabilities that promotes partnership with families—including those of cultural, linguistic and geographic diversity—in order to improve health care services and policies for children.

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