Banner with the photos of families and children and the Family Voices tagline, Keeping families at the center of children's health care

Family Voices is a national family-led organization of families and friends of children and youth with special health care needs (CYSHCN) and disabilities.  We connect a network of family organizations across the United States that provide support to families of CYSHCN. 

We promote partnership with families at all levels of health care–individual and policy decision-making levels—in order to improve health care services and policies for children.

Do you have a child or teen who has special health care needs or disabilities? Find support in your local community.

¿Tiene un niño o adolescente que tiene necesidades especiales de salud o discapacidades? Haga clic aquí para buscar ayuda.

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Family Voices News

Washington Update: Congress (7/11/18)

Congress was on recess last week, but here is some news from the week before: Palliative Care Bill Approved by House Subcommittee On June 27 the Health Subcommittee of the House Energy & Commerce Committee approved by voice vote the Palliative Care and Hospice...

Washington Update: Medicaid/CHIP News (7/11/18)

Medicaid Work Requirements As reported in the July 3 Update, a federal district court invalidated the waiver that the Department of Health and Human Services (HHS) had granted to Kentucky to allow the state to establish work requirements as a condition of Medicaid...

Washington Update: Affordable Care Act (ACA) (7/11/18)

CMS to Withhold Risk-Adjustment Payments to Insurers On Saturday, July 7, CMS announced that it will not be making the "risk adjustment" payments to insurers as prescribed by the ACA. This decision was based on a February 28, 2018, court ruling that bars the current...

Washington Update: TRICARE (7/11/2018)

Moving this Summer? Your TRICARE Options May Change (TRICARE Benefits Update, 6/27/18) Moving is a Qualifying Life Event (QLE). It doesn’t change your TRICARE eligibility, but it may change your TRICARE health plan options. Summer Travel: Getting Care While Overseas...

Washington Update: Your Input Sought (7/11/2018)

NEW Best Practices in Guardianship @SenateAging is taking comment on best practices in guardianship through July 20, 2018, to inform a report they are producing. Email Topics include data collection, avoiding exploitation by guardians,...

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Our Vision

With families at the center of health care, all children and youth reach their full potential and health disparities are eliminated.

Our Mission

Family Voices is a national organization and grassroots network of families and friends of children and youth with special health care needs and disabilities that promotes partnership with families—including those of cultural, linguistic and geographic diversity—in order to improve health care services and policies for children.

In honor of