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Family Voices is a national nonprofit led by families and friends of children and youth with special health care needs (CYSHCN) and disabilities. We connect a network of family-led organizations across the United States that provide support to families of CYSHCN.
We promote partnership with youth and families at all levels of health care, from individual care to policy and decision-making, to improve policies and systems of care for children.
Do you have a child or teen who has special health care needs or disabilities? Find support in your local community.
¿Tiene un niño o adolescente que tiene necesidades especiales de salud o discapacidades? Haga clic aquí para buscar ayuda.
F2Fs in U.S. Territories:
F2Fs and FVAOs serving Tribal Communities:
Family Voices News
News, Information, and Resources (Washington Update July 18, 2018)
NEWS: Government Shuts Down Websites on Treatment and Quality Guidelines On July 16, the administration took down two “microsites” from the website of the Agency for Healthcare Research and Quality (AHRQ) – the National Guideline Clearinghouse (guideline.gov), a...
Your Input Sought/Of Possible Interest (Washington Update, July 18, 2018)
Your Input Sought Best Practices in Guardianship @SenateAging is taking comment on best practices in guardianship through July 20, 2018, to inform a report they are producing. Email comment@aging.senate.gov. Topics include data collection, avoiding exploitation by...
Washington Update: Summary (7/11/18)
Greetings from Washington! Congress was out of session last week so it was a bit quieter than usual inside the beltway -- not counting the fireworks over the Washington Monument on the 4th of July. Things got louder on Monday night, though, when the president...
Washington Update: Webinars and Calls (7/11/18)
NEW Redesigning Health and Social Systems for the Cheyenne River Sioux Tribe Using Community-Engaged Decision-Making Wednesday, July 11, 12:00-1:00 ET Systems for Action National Coordinating Center NEW Messages and Audiences Wednesday, July 11, 2:00-3:00 ET CDC’s...
Washington Update: The Courts (7/11/18)
Supreme Court Nomination On Monday the president announced his nominee for the Supreme Court vacancy to be left by the retirement of Justice Anthony Kennedy – Brett Kavanaugh. Mr. Kavanaugh is currently a federal judge for the District of Columbia Court of Appeals,...
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