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Family Voices is a national family-led organization of families and friends of children and youth with special health care needs (CYSHCN) and disabilities. We connect a network of family organizations across the United States that provide support to families of CYSHCN.
We promote partnership with families at all levels of health care–individual and policy decision-making levels—in order to improve health care services and policies for children.
Do you have a child or teen who has special health care needs or disabilities? Find support in your local community.
¿Tiene un niño o adolescente que tiene necesidades especiales de salud o discapacidades? Haga clic aquí para buscar ayuda.
F2Fs in U.S. Territories:
F2Fs and FVAOs serving Tribal Communities:
Family Voices News
News, Information, and Resources (Washington Update July 18, 2018)
NEWS: Government Shuts Down Websites on Treatment and Quality Guidelines On July 16, the administration took down two “microsites” from the website of the Agency for Healthcare Research and Quality (AHRQ) – the National Guideline Clearinghouse (guideline.gov), a...
Your Input Sought/Of Possible Interest (Washington Update, July 18, 2018)
Your Input Sought Best Practices in Guardianship @SenateAging is taking comment on best practices in guardianship through July 20, 2018, to inform a report they are producing. Email comment@aging.senate.gov. Topics include data collection, avoiding exploitation by...
Washington Update: Summary (7/11/18)
Greetings from Washington! Congress was out of session last week so it was a bit quieter than usual inside the beltway -- not counting the fireworks over the Washington Monument on the 4th of July. Things got louder on Monday night, though, when the president...
Washington Update: Webinars and Calls (7/11/18)
NEW Redesigning Health and Social Systems for the Cheyenne River Sioux Tribe Using Community-Engaged Decision-Making Wednesday, July 11, 12:00-1:00 ET Systems for Action National Coordinating Center NEW Messages and Audiences Wednesday, July 11, 2:00-3:00 ET CDC’s...
Washington Update: The Courts (7/11/18)
Supreme Court Nomination On Monday the president announced his nominee for the Supreme Court vacancy to be left by the retirement of Justice Anthony Kennedy – Brett Kavanaugh. Mr. Kavanaugh is currently a federal judge for the District of Columbia Court of Appeals,...
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