Banner with the photos of families and children and the Family Voices tagline, Keeping families at the center of children's health care

Family Voices is a national family-led organization of families and friends of children and youth with special health care needs (CYSHCN) and disabilities.  We connect a network of family organizations across the United States that provide support to families of CYSHCN. 

We promote partnership with families at all levels of health care–individual and policy decision-making levels—in order to improve health care services and policies for children.

Do you have a child or teen who has special health care needs or disabilities? Find support in your local community.

¿Tiene un niño o adolescente que tiene necesidades especiales de salud o discapacidades? Haga clic aquí para buscar ayuda.

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Family Voices News

Washington Update: Webinars and Calls (7/11/18)

NEW Redesigning Health and Social Systems for the Cheyenne River Sioux Tribe Using Community-Engaged Decision-Making Wednesday, July 11, 12:00-1:00 ET Systems for Action National Coordinating Center   NEW Messages and Audiences Wednesday, July 11, 2:00-3:00 ET CDC’s...

Washington Update: The Courts (7/11/18)

Supreme Court Nomination On Monday the president announced his nominee for the Supreme Court vacancy to be left by the retirement of Justice Anthony Kennedy – Brett Kavanaugh. Mr. Kavanaugh is currently a federal judge for the District of Columbia Court of Appeals,...

Washington Update: The Administration (7/11/18)

Family Separations at the Border As explained in the last Update, the president issued an Executive Order on June 20 to end the administration’s practice of separating immigrant children and families who enter the US at the southern border. In addition, a federal...

Washington Update: Congress (7/11/18)

Congress was on recess last week, but here is some news from the week before: Palliative Care Bill Approved by House Subcommittee On June 27 the Health Subcommittee of the House Energy & Commerce Committee approved by voice vote the Palliative Care and Hospice...

Washington Update: Medicaid/CHIP News (7/11/18)

Medicaid Work Requirements As reported in the July 3 Update, a federal district court invalidated the waiver that the Department of Health and Human Services (HHS) had granted to Kentucky to allow the state to establish work requirements as a condition of Medicaid...

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Our Vision

With families at the center of health care, all children and youth reach their full potential and health disparities are eliminated.

Our Mission

Family Voices is a national organization and grassroots network of families and friends of children and youth with special health care needs and disabilities that promotes partnership with families—including those of cultural, linguistic and geographic diversity—in order to improve health care services and policies for children.

In honor of