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Family Voices is a national family-led organization of families and friends of children and youth with special health care needs (CYSHCN) and disabilities. We connect a network of family organizations across the United States that provide support to families of CYSHCN.
We promote partnership with families at all levels of health care–individual and policy decision-making levels—in order to improve health care services and policies for children.
Do you have a child or teen who has special health care needs or disabilities? Find support in your local community.
¿Tiene un niño o adolescente que tiene necesidades especiales de salud o discapacidades? Haga clic aquí para buscar ayuda.
F2Fs in U.S. Territories:
F2Fs and FVAOs serving Tribal Communities:
Family Voices News
Affordable Care Act (ACA) News and Resources (Washington Update August 2, 2018)
Administration Issues Final Rule on “Short-Term, Limited-Duration” Plans On August 1, the Internal Revenue Service, Department of the Treasury, Department of Labor, and Department of Health and Human Services (HHS) issued a final rule on “short-term, limited-duration”...
TRICARE: Stay Covered After Age 21 with TRICARE Young Adult (Washington Update August 2, 2018)
Stay Covered After Age 21 with TRICARE Young Adult (TRICARE Benefits Update, 7/25/18): “Have you recently graduated from college, but you haven't found your dream job yet? Or did you just turn 21, and you're not enrolled in college? If you're worried about your health...
Evaluation of State/Territorial Compliance with IDEA (Washington Update August 2, 2018)
In its Determination Letters on State Implementation of IDEA (revised July 24, 2018) the Department of Education provided its annual assessment of state compliance with the Individuals with Disabilities Education Act (IDEA). With respect to Part B of the Act (for ages...
Infographic: Financial Hardship in Families Raising CYSHCN (Washington Update August 2, 2018)
The Catalyst Center has developed a one-page infographic to illustrate elements of financial hardship for families who have children and youth with special health care needs (CYSHCN). Resources about family financial hardship are listed at the bottom of the...
Your Input Sought/Of Possible Interest (Washington Update August 2, 2018)
YOUR INPUT SOUGHT NEW CMS Tribal LTSS Program Survey This survey is being conducted by the Centers for Medicare and Medicaid Services (CMS) to help them develop a list of tribally operated long-term services and supports (LTSS) programs across Indian Country. The...
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