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Family Voices is a national family-led organization of families and friends of children and youth with special health care needs (CYSHCN) and disabilities. We connect a network of family organizations across the United States that provide support to families of CYSHCN.
We promote partnership with families at all levels of health care–individual and policy decision-making levels—in order to improve health care services and policies for children.
Do you have a child or teen who has special health care needs or disabilities? Find support in your local community.
¿Tiene un niño o adolescente que tiene necesidades especiales de salud o discapacidades? Haga clic aquí para buscar ayuda.
F2Fs in U.S. Territories:
F2Fs and FVAOs serving Tribal Communities:
Family Voices News
The Administration: Reunification of Immigrant Families (Updated) (Washington Update July 25, 2018)
As reported in last week’s Update a federal court ordered that children under age five be reunited with their families by July 10, and that all other children be reunited with their families by July 26. The administration did not meet the first deadline; only about...
Congress: Electronic Visit Verification (EVV) Legislation Ready for President’s Signature (Washington Update July 25, 2018)
On July 17, the Senate approved a House-passed bill to delay for one year (until January 1, 2020) the implementation of a requirement that Medicaid agencies adopt “electronic visit verification” (EVV) for personal care services provided at an individual’s home. The...
Congress: House Passes Several Health Bills (Washington Update July 25, 2018)
As reported by the House Energy and Commerce Committee, the House passed several bipartisan health-related bills this week: The Palliative Care and Hospice Education and Training Act (R. 1676), which would direct HHS to award grants to improve the training of...
Congress: “Medicare-for-All” Caucus Launched in House (Washington Update July 25, 2018)
On July 20, House Democrats launched a "Medicare-for-All" congressional caucus with the intention of educating other lawmakers and staff on the basics of a government-run, single-payer health care system, and of examining how other such systems operate in other...
Guidance on Medicaid Provider Directories (Washington Update July 25, 2018)
On July 17, the Center for Medicaid and CHIP Services issued a State Medicaid Directors letter (SMD # 18-007) setting forth detailed directions to states for implementing the requirements of Section 5006 of the 21st Century Cures Act (Cures Act). Section 5006 of the...
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