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Family Voices is a national nonprofit led by families and friends of children and youth with special health care needs (CYSHCN) and disabilities. We connect a network of family-led organizations across the United States that provide support to families of CYSHCN.
We promote partnership with youth and families at all levels of health care, from individual care to policy and decision-making, to improve policies and systems of care for children.
Do you have a child or teen who has special health care needs or disabilities? Find support in your local community.
¿Tiene un niño o adolescente que tiene necesidades especiales de salud o discapacidades? Haga clic aquí para buscar ayuda.
F2Fs in U.S. Territories:
F2Fs and FVAOs serving Tribal Communities:
Family Voices News
Congress: Bill Introduced for Paid Parental Leave to Be Paid Back from Future Social Security Retirement Benefits (Washington Update, August 8, 2018)
On August 1, Senator Marco Rubio (R-FL) introduced the Economic Security for New Parents Act (S.3345). The bill would give parents the option to take paid parental leave for up to 12 weeks, for a total of 24 weeks per couple, for each child who has been born or...
Medicaid/CHIP News, Information, and Resources (Washington Update, August 8, 2018)
Medicaid Waivers Pending Medicaid waiver proposals (updated) Kentucky Waiver – Open for Public Comment Again – due Aug. 18 As reported in the July 3 Washington Update (under “Courts”), a federal court vacated the Department of Health and Human Services (HHS) approval...
Affordable Care Act (ACA) News (Washington Update, August 8, 2018)
More on “Short-Term, Limited-Duration” Plans As reported in the August 2 Update, the administration issued a final rule on August 1 to permit insurers to sell on “short-term, limited-duration” insurance (STLDI) plans that are effective for up to one year and are...
Zika News, Information, and Resources (Washington Update, August 8, 2018)
New Report and Resources on Babies with Zika Virus in the US Territories On August 7, the Centers for Disease Control and Prevention (CDC) released the largest report to-date on health outcomes in US babies affected by the Zika virus. The report is about babies born...
Final Rule on Transparency of Hospital Charges (Washington Update, August 8, 2018)
As explained in this August 2 press release, the Centers for Medicare and Medicaid Services (CMS) last week released a final rule on Medicare reimbursement for hospitals and other facilities. The rule also includes provisions intended to increase the transparency of...
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