Quick Links
Family Voices is a national nonprofit led by families and friends of children and youth with special health care needs (CYSHCN) and disabilities. We connect a network of family-led organizations across the United States that provide support to families of CYSHCN.
We promote partnership with youth and families at all levels of health care, from individual care to policy and decision-making, to improve policies and systems of care for children.
Do you have a child or teen who has special health care needs or disabilities? Find support in your local community.
¿Tiene un niño o adolescente que tiene necesidades especiales de salud o discapacidades? Haga clic aquí para buscar ayuda.
F2Fs in U.S. Territories:
F2Fs and FVAOs serving Tribal Communities:
Family Voices News
Affordable Care Act News (Washington Update, August 22, 2018)
Clarification of “Exceptional Circumstances” SEP for Consumers Impacted by Disasters An August 20 email from the Health Insurance Marketplace announced: “CMS has released guidance clarifying Federally-facilitated Marketplace (FFM) Special Enrollment Period (SEP)...
TRICARE News (Washington Update, August 22, 2018)
August 23 Webinar: Bring Your TRICARE Benefit Questions to August 23 Webinar (article) Webinar: Ask TRICARE -- Thursday, August 23, 1:00-2:00 pm ET. Register. Benefit Updates: Using Your TRICARE Benefit with Other Health Insurance (TRICARE Benefit Update, 8/7/18) How...
From the Food & Drug Administration Newsroom: Generic Epigen (Washington Update, August 22, 2018)
Aug. 16 -- FDA Approves First Generic Version of Epipen The U.S. Food and Drug Administration today approved the first generic version of EpiPen and EpiPen Jr (epinephrine) auto-injector for the emergency treatment of allergic reactions, including those that are...
Q&A from a Conversation on Models of Care Delivery (Washington Update, August 22, 2018)
Read the responses to questions that were submitted during the June 28 "Conversation on Models of Care Delivery for Children with Medical Complexity," a webinar in the Lucile Packard Foundation for Children’s Health series, Building Systems that Work for Children with...
Materials from Webinar on Medicaid Storytelling (Washington Update, August 22, 2018)
The webinar recording and slides from last week’s webinar, “Demonstrating Medicaid’s Value through Storytelling,” are now available on the website of the Georgetown Center on Children and Families here.
Encourage confidence to act