Quick Links
Family Voices is a national family-led organization of families and friends of children and youth with special health care needs (CYSHCN) and disabilities. We connect a network of family organizations across the United States that provide support to families of CYSHCN.
We promote partnership with families at all levels of health care–individual and policy decision-making levels—in order to improve health care services and policies for children.
Do you have a child or teen who has special health care needs or disabilities? Find support in your local community.
¿Tiene un niño o adolescente que tiene necesidades especiales de salud o discapacidades? Haga clic aquí para buscar ayuda.
F2Fs in U.S. Territories:
F2Fs and FVAOs serving Tribal Communities:
Family Voices News
Medicaid/CHIP News, Information, and Resources (Washington Update, August 8, 2018)
Medicaid Waivers Pending Medicaid waiver proposals (updated) Kentucky Waiver – Open for Public Comment Again – due Aug. 18 As reported in the July 3 Washington Update (under “Courts”), a federal court vacated the Department of Health and Human Services (HHS) approval...
Affordable Care Act (ACA) News (Washington Update, August 8, 2018)
More on “Short-Term, Limited-Duration” Plans As reported in the August 2 Update, the administration issued a final rule on August 1 to permit insurers to sell on “short-term, limited-duration” insurance (STLDI) plans that are effective for up to one year and are...
Zika News, Information, and Resources (Washington Update, August 8, 2018)
New Report and Resources on Babies with Zika Virus in the US Territories On August 7, the Centers for Disease Control and Prevention (CDC) released the largest report to-date on health outcomes in US babies affected by the Zika virus. The report is about babies born...
Final Rule on Transparency of Hospital Charges (Washington Update, August 8, 2018)
As explained in this August 2 press release, the Centers for Medicare and Medicaid Services (CMS) last week released a final rule on Medicare reimbursement for hospitals and other facilities. The rule also includes provisions intended to increase the transparency of...
Palliative Care Campaign and Resources (Washington Update, August 8, 2018)
The National Institute of Nursing Research (NINR) has developed the Palliative Care: Conversations Matter ® campaign to increase the use of palliative care for children and teens living with serious illnesses. Provided on the campaign website are materials for...
Encourage confidence to act