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Family Voices is a national family-led organization of families and friends of children and youth with special health care needs (CYSHCN) and disabilities. We connect a network of family organizations across the United States that provide support to families of CYSHCN.
We promote partnership with families at all levels of health care–individual and policy decision-making levels—in order to improve health care services and policies for children.
Do you have a child or teen who has special health care needs or disabilities? Find support in your local community.
¿Tiene un niño o adolescente que tiene necesidades especiales de salud o discapacidades? Haga clic aquí para buscar ayuda.
F2Fs in U.S. Territories:
F2Fs and FVAOs serving Tribal Communities:
Family Voices News
CDC Training and Materials on Health Literacy (Washington Update, August 22, 2018)
CDC has created the Health Literacy Training Plan to help build knowledge and skills consistent with new, professional communication practices. (You must create an account to access the information.) The training starts with the "Health Literacy for Public Health...
Your Input Sought/Of Possible Interest (Washington Update, August 22, 2018)
YOUR INPUT SOUGHT Indian Health Service Seeks Comments on Draft Strategic Plan Comments due August 23. As described in a Federal Register Notice, The Indian Health Service (IHS) is developing an agency-wide Strategic Plan for fiscal years 2018-2022, and is seeking...
Upcoming Webinars from the Field (Washington Update, August 8, 2018)
NEW HRSA Grants Education & Technical Assistance WEBINAR SERIES for Tribes, Tribal Organizations, Indian Health, Tribal and Urban Indian Health Programs Wednesday, August 8, 1:00-2:30 pm ET – Preparing a Budget for Your Grant Proposal Wednesday, Sept. 12,...
The Courts: Four Major Cities Sue the Administration about ACA Implementation (Washington Update, August 8, 2018)
On August 1, the cities of Baltimore, Chicago, Cincinnati, and Columbus, Ohio, filed suit in a federal district court in Baltimore. See Four U.S. Cities Sue over Trump “Sabotage” of Obamacare (Reuters, 8/2/18). The plaintiffs allege that the administration has taken...
Congress: Bill Introduced for Paid Parental Leave to Be Paid Back from Future Social Security Retirement Benefits (Washington Update, August 8, 2018)
On August 1, Senator Marco Rubio (R-FL) introduced the Economic Security for New Parents Act (S.3345). The bill would give parents the option to take paid parental leave for up to 12 weeks, for a total of 24 weeks per couple, for each child who has been born or...
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