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Family Voices is a national nonprofit led by families and friends of children and youth with special health care needs (CYSHCN) and disabilities. We connect a network of family-led organizations across the United States that provide support to families of CYSHCN.
We promote partnership with youth and families at all levels of health care, from individual care to policy and decision-making, to improve policies and systems of care for children.
Do you have a child or teen who has special health care needs or disabilities? Find support in your local community.
¿Tiene un niño o adolescente que tiene necesidades especiales de salud o discapacidades? Haga clic aquí para buscar ayuda.
F2Fs in U.S. Territories:
F2Fs and FVAOs serving Tribal Communities:
Family Voices News
Senate Report and Hearing on Care of Unaccompanied Immigrant Children (Washington Update, August 22, 2018)
On August 15, Rob Portman (R-OH) and Tom Carper (D-DE), Chair and Ranking Member, respectively, of the Permanent Subcommittee on Investigations of the Senate Committee on Homeland Security and Governmental Affairs, issued a staff report, Oversight of the Care of...
In Congress: Budget and Appropriations (Washington Update, August 22, 2018)
The Senate will begin debate this week on a bill combining two FY 2019 appropriations bills -- one for the Department of Defense and one for the Departments of Labor, Health, and Human Services (HHS), and Education, known as the “Labor-HHS” bill. Together these bills...
Bill on Children’s Hospice and Palliative Care under Medicaid (Washington Update, August 22, 2018)
On July 26, Rep. Diana DeGette (D-CO) and others introduced a bipartisan bill -- The Children's Program of All-Inclusive Coordinated Care (ChiPACC) Act (H.R. 6560) – which would fill gaps in hospice and palliative services that children now receive under Medicaid. The...
News from Medicaid (Washington Update, August 22, 2018)
From the CMS Newsroom: Aug. 16 -- CMS Streamlines Medicaid Review Process, Achieves Significant Reduction in Approval Times. “…Today, CMS issued a second Informational Bulletin related to [state plan amendment (SPA)] and 1915 waiver process improvements. This Bulletin...
Medicaid Waiver News (Washington Update, August 22, 2018)
Kentucky Waiver As reported in the July 3 Washington Update (under “Courts”), a federal court vacated the Department of Health and Human Services (HHS) approval of a Kentucky Medicaid waiver proposal to impose work requirements on Medicaid beneficiaries. The court’s...
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