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Family Voices is a national nonprofit led by families and friends of children and youth with special health care needs (CYSHCN) and disabilities. We connect a network of family-led organizations across the United States that provide support to families of CYSHCN.
We promote partnership with youth and families at all levels of health care, from individual care to policy and decision-making, to improve policies and systems of care for children.
Do you have a child or teen who has special health care needs or disabilities? Find support in your local community.
¿Tiene un niño o adolescente que tiene necesidades especiales de salud o discapacidades? Haga clic aquí para buscar ayuda.
F2Fs in U.S. Territories:
F2Fs and FVAOs serving Tribal Communities:
Family Voices News
News from TRICARE and the State Department (Washington Update, August 29, 2018)
Both Military and Foreign-Service Families Seek Better Care for Their Children with Special Health Care Needs “We Are Just Tired of This Fight”: Special-needs families say military is still failing them As explained in the above article from Stars & Stripes...
News, Information, Resources (Washington Update, August 29, 2018)
CDC Expands Autism Monitoring Efforts (Disability Scoop, 8/23/18) The Centers for Disease Control and Prevention (CDC) has announced the availability of research grants to assess 16-year-olds who were previously identified as having autism symptoms when they were age...
Your Input Sought/Of Possible Interest (Washington Update, August 29, 2018)
Your Input Sought NEW Survey on attending genetics appointments after referrals Open until Oct. 12 The NYMAC (New York-Mid-Atlantic Regional Genetics Network) -- one of seven regional networks in the country funded by the Health Resources and Services Administration –...
Upcoming Webinars from the Field (Washington Update, August 22, 2018)
TODAY: A Conversation on Supporting Self-Management in Children and Adolescents with Complex Chronic Conditions Wednesday, August 22, 1:00-2:00 pm ET Lucile Packard Foundation for Children’s Health Background information. TODAY: Protecting Pregnant Women and Babies...
Lawsuit Challenges Arkansas Work Requirements (Washington Update, August 22, 2018)
As reported in earlier Updates, Medicaid beneficiaries in Kentucky challenged the administration’s approval of the waiver application that would allow the state to establish work requirements for beneficiaries, among other things. A federal court invalidated approval...
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