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Family Voices is a national family-led organization of families and friends of children and youth with special health care needs (CYSHCN) and disabilities. We connect a network of family organizations across the United States that provide support to families of CYSHCN.
We promote partnership with families at all levels of health care–individual and policy decision-making levels—in order to improve health care services and policies for children.
Do you have a child or teen who has special health care needs or disabilities? Find support in your local community.
¿Tiene un niño o adolescente que tiene necesidades especiales de salud o discapacidades? Haga clic aquí para buscar ayuda.
F2Fs in U.S. Territories:
F2Fs and FVAOs serving Tribal Communities:
Family Voices News
Palliative Care Campaign and Resources (Washington Update, August 8, 2018)
The National Institute of Nursing Research (NINR) has developed the Palliative Care: Conversations Matter ® campaign to increase the use of palliative care for children and teens living with serious illnesses. Provided on the campaign website are materials for...
ABLE National Resource Center Launches 2018 #ABLEtoSave Campaign (Washington Update 8/8/18)
August 2018 is #ABLEtoSave month, a nationwide awareness campaign led by the ABLE National Resource Center (ANRC) to provide information about ABLE accounts. During each of the four weeks in August, ANRC will provide resources, including: Informational videos Webinars...
Your Input Sought/Of Possible Interest (Washington Update, August 8, 2018)
YOUR INPUT SOUGHT NEW Indian Health Service Seeks Comments on Draft Strategic Plan Comments due August 23. As described in a Federal Register Notice, The Indian Health Service (IHS) is developing an agency-wide Strategic Plan for fiscal years 2018-2022, and is seeking...
Upcoming Webinars from the Field (Washington Update August 2, 2018)
What Families, Family-based Support Organizations and EHDI Programs Want: Findings from a National Needs Assessment Thursday, August 2, 1:00-2:00 pm ET Hands & Voices™ Igniting Change from the Ground Up: Uplifting Best Practices for Community Organizing and...
THE COURTS: Supreme Court Confirmation Hearing (Washington Update August 2, 2018)
On August 1, Senate Judiciary Chairman Chuck Grassley (R-IA), said that the committee would hold confirmation hearings on Supreme Court nominee Brett Kavanaugh in September, and that a Senate confirmation vote could take place as early as October 1. See Judiciary...