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Family Voices is a national family-led organization of families and friends of children and youth with special health care needs (CYSHCN) and disabilities. We connect a network of family organizations across the United States that provide support to families of CYSHCN.
We promote partnership with families at all levels of health care–individual and policy decision-making levels—in order to improve health care services and policies for children.
Do you have a child or teen who has special health care needs or disabilities? Find support in your local community.
¿Tiene un niño o adolescente que tiene necesidades especiales de salud o discapacidades? Haga clic aquí para buscar ayuda.
F2Fs in U.S. Territories:
F2Fs and FVAOs serving Tribal Communities:
Family Voices News
Your Input Sought/Of Possible Interest (Washington Update, August 29, 2018)
Your Input Sought NEW Survey on attending genetics appointments after referrals Open until Oct. 12 The NYMAC (New York-Mid-Atlantic Regional Genetics Network) -- one of seven regional networks in the country funded by the Health Resources and Services Administration –...
Upcoming Webinars from the Field (Washington Update, August 22, 2018)
TODAY: A Conversation on Supporting Self-Management in Children and Adolescents with Complex Chronic Conditions Wednesday, August 22, 1:00-2:00 pm ET Lucile Packard Foundation for Children’s Health Background information. TODAY: Protecting Pregnant Women and Babies...
Lawsuit Challenges Arkansas Work Requirements (Washington Update, August 22, 2018)
As reported in earlier Updates, Medicaid beneficiaries in Kentucky challenged the administration’s approval of the waiver application that would allow the state to establish work requirements for beneficiaries, among other things. A federal court invalidated approval...
Parents Separated from Their Children Seek a Second Chance at Making Their Asylum Claims (Washington Update, August 22, 2018)
Parents who failed screening interviews for their asylum cases are seeking a second chance to be interviewed. They allege that the interviews were improperly conducted, in part because the parents were traumatized from being separated from their children. See New...
Supreme Court Nomination (Washington Update, August 22, 2018)
Supreme Court nominee Brett Kavanaugh has been doing meetings with Senators in preparation for his confirmation hearing. Among those he has met with are moderate Democrats who are up for reelection this year and therefore might be open to voting for his confirmation. ...
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