Banner with the photos of families and children and the Family Voices tagline, Keeping families at the center of children's health care

Family Voices is a national family-led organization of families and friends of children and youth with special health care needs (CYSHCN) and disabilities.  We connect a network of family organizations across the United States that provide support to families of CYSHCN. 

We promote partnership with families at all levels of health care–individual and policy decision-making levels—in order to improve health care services and policies for children.

Do you have a child or teen who has special health care needs or disabilities? Find support in your local community.

¿Tiene un niño o adolescente que tiene necesidades especiales de salud o discapacidades? Haga clic aquí para buscar ayuda.

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Family Voices News

Medicaid Waiver News (Washington Update, August 22, 2018)

Kentucky Waiver As reported in the July 3 Washington Update (under “Courts”), a federal court vacated the Department of Health and Human Services (HHS) approval of a Kentucky Medicaid waiver proposal to impose work requirements on Medicaid beneficiaries. The court’s...

Affordable Care Act News (Washington Update, August 22, 2018)

Clarification of “Exceptional Circumstances” SEP for Consumers Impacted by Disasters An August 20 email from the Health Insurance Marketplace announced: “CMS has released guidance clarifying Federally-facilitated Marketplace (FFM) Special Enrollment Period (SEP)...

TRICARE News (Washington Update, August 22, 2018)

August 23 Webinar: Bring Your TRICARE Benefit Questions to August 23 Webinar (article) Webinar: Ask TRICARE -- Thursday, August 23, 1:00-2:00 pm ET. Register. Benefit Updates: Using Your TRICARE Benefit with Other Health Insurance (TRICARE Benefit Update, 8/7/18) How...

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Our Vision

With families at the center of health care, all children and youth reach their full potential and health disparities are eliminated.

Our Mission

Family Voices is a national organization and grassroots network of families and friends of children and youth with special health care needs and disabilities that promotes partnership with families—including those of cultural, linguistic and geographic diversity—in order to improve health care services and policies for children.

In honor of