YOUR INPUT SOUGHT

NEW CMS Tribal LTSS Program Survey

This survey is being conducted by the Centers for Medicare and Medicaid Services (CMS) to help them develop a list of tribally operated long-term services and supports (LTSS) programs across Indian Country. The results will enable the sharing of LTSS best practices across Indian Country. Tribes and tribal organizations may provide these services directly, or through a contract or agreement with an outside organization.

Research Survey for Caretakers of Women with Intellectual and Developmental Disabilities

A researcher at Brandeis University is conducting a study on sexual and reproductive health care for women with intellectual and developmental disabilities. She is seeking family caregivers of such women to complete an online survey. The goal of the survey is to understand the perspectives and experiences of family caregivers about sexual and reproductive health care for women with intellectual and developmental disabilities. The survey is available here.

OF POSSIBLE INTEREST

What It Says To My Daughter When Lawmakers Treat Accessibility as an Afterthought

(HuffPost, 7/26/18)

Texas Couples Feel Pressure to Divorce to Afford Care for Disabled, Ill Children

(Dallas Morning News, 7/15/18)

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Our Vision

With families at the center of health care, all children and youth reach their full potential and health disparities are eliminated.

Our Mission

Family Voices is a national organization and grassroots network of families and friends of children and youth with special health care needs and disabilities that promotes partnership with families—including those of cultural, linguistic and geographic diversity—in order to improve health care services and policies for children.

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