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Family Voices is a national nonprofit led by families and friends of children and youth with special health care needs (CYSHCN) and disabilities. We connect a network of family-led organizations across the United States that provide support to families of CYSHCN.
We promote partnership with youth and families at all levels of health care, from individual care to policy and decision-making, to improve policies and systems of care for children.
Do you have a child or teen who has special health care needs or disabilities? Find support in your local community.
¿Tiene un niño o adolescente que tiene necesidades especiales de salud o discapacidades? Haga clic aquí para buscar ayuda.
F2Fs in U.S. Territories:
F2Fs and FVAOs serving Tribal Communities:
Family Voices News
Washington Update: Affordable Care Act (ACA) (7/11/18)
CMS to Withhold Risk-Adjustment Payments to Insurers On Saturday, July 7, CMS announced that it will not be making the "risk adjustment" payments to insurers as prescribed by the ACA. This decision was based on a February 28, 2018, court ruling that bars the current...
Washington Update: TRICARE (7/11/2018)
Moving this Summer? Your TRICARE Options May Change (TRICARE Benefits Update, 6/27/18) Moving is a Qualifying Life Event (QLE). It doesn’t change your TRICARE eligibility, but it may change your TRICARE health plan options. Summer Travel: Getting Care While Overseas...
Washington Update: Your Input Sought (7/11/2018)
NEW Best Practices in Guardianship @SenateAging is taking comment on best practices in guardianship through July 20, 2018, to inform a report they are producing. Email comment@aging.senate.gov. Topics include data collection, avoiding exploitation by guardians,...
Washington Update Summary: July 3, 2018
Greetings from Washington! Last week was a busy one in Congress, the courts, and the administration. The House rejected an immigration bill, and a Senate committee approved some maternal and child health bills. One federal court ordered the administration to stop...
Week of July 3, 2018: Upcoming Webinars and Calls in the Field
Leveraging Digital Tools to Treat Patients along the Continuum of Care Wednesday, July 11, 2:00-3:00 ET FierceHealthCare/Appian (one presenter is from Nemours Children’s Hospital) Adverse Childhood Experiences: Implications for Policymakers and Practitioners...
Encourage confidence to act