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Family Voices is a national family-led organization of families and friends of children and youth with special health care needs (CYSHCN) and disabilities. We connect a network of family organizations across the United States that provide support to families of CYSHCN.
We promote partnership with families at all levels of health care–individual and policy decision-making levels—in order to improve health care services and policies for children.
Do you have a child or teen who has special health care needs or disabilities? Find support in your local community.
¿Tiene un niño o adolescente que tiene necesidades especiales de salud o discapacidades? Haga clic aquí para buscar ayuda.
F2Fs in U.S. Territories:
F2Fs and FVAOs serving Tribal Communities:
Family Voices News
Washington Update: Your Input Sought (7/11/2018)
NEW Best Practices in Guardianship @SenateAging is taking comment on best practices in guardianship through July 20, 2018, to inform a report they are producing. Email comment@aging.senate.gov. Topics include data collection, avoiding exploitation by guardians,...
Washington Update Summary: July 3, 2018
Greetings from Washington! Last week was a busy one in Congress, the courts, and the administration. The House rejected an immigration bill, and a Senate committee approved some maternal and child health bills. One federal court ordered the administration to stop...
Week of July 3, 2018: Upcoming Webinars and Calls in the Field
Leveraging Digital Tools to Treat Patients along the Continuum of Care Wednesday, July 11, 2:00-3:00 ET FierceHealthCare/Appian (one presenter is from Nemours Children’s Hospital) Adverse Childhood Experiences: Implications for Policymakers and Practitioners...
The Courts: Federal Court Invalidates Approval of Kentucky Waiver to Establish Medicaid Work Requirements
The state of Kentucky requested a waiver from the Centers for Medicare and Medicaid Services (CMS) to impose work requirements on Medicaid beneficiaries. CMS approved the state’s request. On June 29, the Federal District Court for the District of Columbia invalidated...
The Administration: Family Separations at the Border
The Department of Health and Human Services (HHS) Office of Refugee Resettlement (ORR) has custody of over 2000 children who were separated from their parents after crossing the border illegally since May. The president issued an Executive Order on June 20 to end the...
Encourage confidence to act