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Family Voices is a national nonprofit led by families and friends of children and youth with special health care needs (CYSHCN) and disabilities. We connect a network of family-led organizations across the United States that provide support to families of CYSHCN.
We promote partnership with youth and families at all levels of health care, from individual care to policy and decision-making, to improve policies and systems of care for children.
Do you have a child or teen who has special health care needs or disabilities? Find support in your local community.
¿Tiene un niño o adolescente que tiene necesidades especiales de salud o discapacidades? Haga clic aquí para buscar ayuda.
F2Fs in U.S. Territories:
F2Fs and FVAOs serving Tribal Communities:
Family Voices News
Medicaid/CHIP News (Washington Update, July 18, 2018)
More than 7,000 fail to meet Medicaid work requirements in Arkansas (The Hill, 07/16/18) WORTH REPEATING: Medicaid Social Media Toolkit The American Association on Health & Disability has developed a social media toolkit for Medicaid. The toolkit provides sample...
Affordable Care Act (ACA) and TRICARE News (Washington Update, July 18, 2018)
CMS to Reduce Funding for ACA Navigators Last week the administration announced that it will significantly reduce funding for ACA Navigators for the next open enrollment period (Nov. 1-Dec. 15, 2018, for 2019 plans). (See the CMS press release.) The Funding...
News, Information, and Resources (Washington Update July 18, 2018)
NEWS: Government Shuts Down Websites on Treatment and Quality Guidelines On July 16, the administration took down two “microsites” from the website of the Agency for Healthcare Research and Quality (AHRQ) – the National Guideline Clearinghouse (guideline.gov), a...
Your Input Sought/Of Possible Interest (Washington Update, July 18, 2018)
Your Input Sought Best Practices in Guardianship @SenateAging is taking comment on best practices in guardianship through July 20, 2018, to inform a report they are producing. Email comment@aging.senate.gov. Topics include data collection, avoiding exploitation by...
Washington Update: Summary (7/11/18)
Greetings from Washington! Congress was out of session last week so it was a bit quieter than usual inside the beltway -- not counting the fireworks over the Washington Monument on the 4th of July. Things got louder on Monday night, though, when the president...
Encourage confidence to act