Banner with the photos of families and children and the Family Voices tagline, Keeping families at the center of children's health care

Family Voices is a national family-led organization of families and friends of children and youth with special health care needs (CYSHCN) and disabilities.  We connect a network of family organizations across the United States that provide support to families of CYSHCN. 

We promote partnership with families at all levels of health care–individual and policy decision-making levels—in order to improve health care services and policies for children.

Do you have a child or teen who has special health care needs or disabilities? Find support in your local community.

¿Tiene un niño o adolescente que tiene necesidades especiales de salud o discapacidades? Haga clic aquí para buscar ayuda.

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Family Voices News

Medicaid Waiver News (Washington Update July 25, 2018)

Kentucky Waiver As reported in the July 3 Washington Update (under “Courts”), a federal court vacated the Department of Health and Human Services (HHS) approval of a Kentucky Medicaid waiver proposal to impose work requirements on Medicaid beneficiaries. The ruling...

Affordable Care Act (ACA) News (Washington Update July 25, 2018)

Trump Administration Preparing Fix for Obamacare Risk Payments (Bloomberg, 7/19/18) As reported earlier, the administration announced that it would no longer pay insurance companies the risk-adjustment payments established by the Affordable Care Act (ACA). These...

HHS Working Group on Drug Importation (Washington Update July 25, 2018)

On July 19, the Department of Health and Human Services (HHS) announced that Secretary Alex Azar requested FDA Commissioner Scott Gottlieb to establish a working group to examine how to safely import prescription drugs from other countries in the event of a dramatic...

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Our Vision

All children, youth, and families, especially those with special health care needs and disabilities, experience their best health and quality of life.

Our Mission

Family Voices is a family-led organization that transforms systems of care to work better for all children and youth, especially those with special health care needs or disabilities. By putting families at the forefront and centering their leadership and lived expertise, we build a culture that includes everyone and fosters equitable outcomes.

Donate by mail

To donate by mail, your check payable to Family Voices can be mailed to us at:
Family Voices
561 Virginia Rd.
Bldg. 4, Suite 300
Concord, MA 01742

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