Quick Links
Family Voices is a national nonprofit led by families and friends of children and youth with special health care needs (CYSHCN) and disabilities. We connect a network of family-led organizations across the United States that provide support to families of CYSHCN.
We promote partnership with youth and families at all levels of health care, from individual care to policy and decision-making, to improve policies and systems of care for children.
Do you have a child or teen who has special health care needs or disabilities? Find support in your local community.
¿Tiene un niño o adolescente que tiene necesidades especiales de salud o discapacidades? Haga clic aquí para buscar ayuda.
F2Fs in U.S. Territories:
F2Fs and FVAOs serving Tribal Communities:
Family Voices News
Final Rule on Transparency of Hospital Charges (Washington Update, August 8, 2018)
As explained in this August 2 press release, the Centers for Medicare and Medicaid Services (CMS) last week released a final rule on Medicare reimbursement for hospitals and other facilities. The rule also includes provisions intended to increase the transparency of...
Palliative Care Campaign and Resources (Washington Update, August 8, 2018)
The National Institute of Nursing Research (NINR) has developed the Palliative Care: Conversations Matter ® campaign to increase the use of palliative care for children and teens living with serious illnesses. Provided on the campaign website are materials for...
ABLE National Resource Center Launches 2018 #ABLEtoSave Campaign (Washington Update 8/8/18)
August 2018 is #ABLEtoSave month, a nationwide awareness campaign led by the ABLE National Resource Center (ANRC) to provide information about ABLE accounts. During each of the four weeks in August, ANRC will provide resources, including: Informational videos Webinars...
Your Input Sought/Of Possible Interest (Washington Update, August 8, 2018)
YOUR INPUT SOUGHT NEW Indian Health Service Seeks Comments on Draft Strategic Plan Comments due August 23. As described in a Federal Register Notice, The Indian Health Service (IHS) is developing an agency-wide Strategic Plan for fiscal years 2018-2022, and is seeking...
Upcoming Webinars from the Field (Washington Update August 2, 2018)
What Families, Family-based Support Organizations and EHDI Programs Want: Findings from a National Needs Assessment Thursday, August 2, 1:00-2:00 pm ET Hands & Voices™ Igniting Change from the Ground Up: Uplifting Best Practices for Community Organizing and...
Encourage confidence to act