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Family Voices is a national family-led organization of families and friends of children and youth with special health care needs (CYSHCN) and disabilities. We connect a network of family organizations across the United States that provide support to families of CYSHCN.
We promote partnership with families at all levels of health care–individual and policy decision-making levels—in order to improve health care services and policies for children.
Do you have a child or teen who has special health care needs or disabilities? Find support in your local community.
¿Tiene un niño o adolescente que tiene necesidades especiales de salud o discapacidades? Haga clic aquí para buscar ayuda.
F2Fs in U.S. Territories:
F2Fs and FVAOs serving Tribal Communities:
Family Voices News
Medicaid Waiver News (Washington Update July 25, 2018)
Kentucky Waiver As reported in the July 3 Washington Update (under “Courts”), a federal court vacated the Department of Health and Human Services (HHS) approval of a Kentucky Medicaid waiver proposal to impose work requirements on Medicaid beneficiaries. The ruling...
Affordable Care Act (ACA) News (Washington Update July 25, 2018)
Trump Administration Preparing Fix for Obamacare Risk Payments (Bloomberg, 7/19/18) As reported earlier, the administration announced that it would no longer pay insurance companies the risk-adjustment payments established by the Affordable Care Act (ACA). These...
FEDVIP is Coming: Get to Know Dental and Vision Plans Today (Washington Update July 25, 2018)
FEDVIP is Coming: Get to Know Dental and Vision Plans Today (TRICARE Benefit Update, 7/17/18)
HHS Working Group on Drug Importation (Washington Update July 25, 2018)
On July 19, the Department of Health and Human Services (HHS) announced that Secretary Alex Azar requested FDA Commissioner Scott Gottlieb to establish a working group to examine how to safely import prescription drugs from other countries in the event of a dramatic...
HRSA Challenge to Improve Care Coordination for CSHCN through Tech Innovations (Washington Update July 25, 2018)
In August, the Health Resources and Services Administration (HRSA) will launch the Care Coordination for CSHCN Challenge – a competition intended to encourage the creation of tech innovations to help families and case managers with the care and coordination of...
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