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Family Voices is a national nonprofit led by families and friends of children and youth with special health care needs (CYSHCN) and disabilities. We connect a network of family-led organizations across the United States that provide support to families of CYSHCN.
We promote partnership with youth and families at all levels of health care, from individual care to policy and decision-making, to improve policies and systems of care for children.
Do you have a child or teen who has special health care needs or disabilities? Find support in your local community.
¿Tiene un niño o adolescente que tiene necesidades especiales de salud o discapacidades? Haga clic aquí para buscar ayuda.
F2Fs in U.S. Territories:
F2Fs and FVAOs serving Tribal Communities:
Family Voices News
Your Input Sought/Of Possible Interest (Washington Update August 2, 2018)
YOUR INPUT SOUGHT NEW CMS Tribal LTSS Program Survey This survey is being conducted by the Centers for Medicare and Medicaid Services (CMS) to help them develop a list of tribally operated long-term services and supports (LTSS) programs across Indian Country. The...
Upcoming Webinars from the Field (Washington Update July 25, 2018)
NEW Managed Long-Term Services and Supports (MLTSS) for People with Intellectual and Developmental Disabilities: Strategies for Success Wednesday, July 25, 12:30 pm-1:30 pm ET National Association of States United for Aging and Disabilities (NASUAD) Ticket to Work...
The Administration: Reunification of Immigrant Families (Updated) (Washington Update July 25, 2018)
As reported in last week’s Update a federal court ordered that children under age five be reunited with their families by July 10, and that all other children be reunited with their families by July 26. The administration did not meet the first deadline; only about...
Congress: Electronic Visit Verification (EVV) Legislation Ready for President’s Signature (Washington Update July 25, 2018)
On July 17, the Senate approved a House-passed bill to delay for one year (until January 1, 2020) the implementation of a requirement that Medicaid agencies adopt “electronic visit verification” (EVV) for personal care services provided at an individual’s home. The...
Congress: House Passes Several Health Bills (Washington Update July 25, 2018)
As reported by the House Energy and Commerce Committee, the House passed several bipartisan health-related bills this week: The Palliative Care and Hospice Education and Training Act (R. 1676), which would direct HHS to award grants to improve the training of...
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