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Family Voices is a national family-led organization of families and friends of children and youth with special health care needs (CYSHCN) and disabilities. We connect a network of family organizations across the United States that provide support to families of CYSHCN.
We promote partnership with families at all levels of health care–individual and policy decision-making levels—in order to improve health care services and policies for children.
Do you have a child or teen who has special health care needs or disabilities? Find support in your local community.
¿Tiene un niño o adolescente que tiene necesidades especiales de salud o discapacidades? Haga clic aquí para buscar ayuda.
F2Fs in U.S. Territories:
F2Fs and FVAOs serving Tribal Communities:
Family Voices News
Senate Report and Hearing on Care of Unaccompanied Immigrant Children (Washington Update, August 22, 2018)
On August 15, Rob Portman (R-OH) and Tom Carper (D-DE), Chair and Ranking Member, respectively, of the Permanent Subcommittee on Investigations of the Senate Committee on Homeland Security and Governmental Affairs, issued a staff report, Oversight of the Care of...
In Congress: Budget and Appropriations (Washington Update, August 22, 2018)
The Senate will begin debate this week on a bill combining two FY 2019 appropriations bills -- one for the Department of Defense and one for the Departments of Labor, Health, and Human Services (HHS), and Education, known as the “Labor-HHS” bill. Together these bills...
Bill on Children’s Hospice and Palliative Care under Medicaid (Washington Update, August 22, 2018)
On July 26, Rep. Diana DeGette (D-CO) and others introduced a bipartisan bill -- The Children's Program of All-Inclusive Coordinated Care (ChiPACC) Act (H.R. 6560) – which would fill gaps in hospice and palliative services that children now receive under Medicaid. The...
News from Medicaid (Washington Update, August 22, 2018)
From the CMS Newsroom: Aug. 16 -- CMS Streamlines Medicaid Review Process, Achieves Significant Reduction in Approval Times. “…Today, CMS issued a second Informational Bulletin related to [state plan amendment (SPA)] and 1915 waiver process improvements. This Bulletin...
Medicaid Waiver News (Washington Update, August 22, 2018)
Kentucky Waiver As reported in the July 3 Washington Update (under “Courts”), a federal court vacated the Department of Health and Human Services (HHS) approval of a Kentucky Medicaid waiver proposal to impose work requirements on Medicaid beneficiaries. The court’s...
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