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Family Voices is a national nonprofit led by families and friends of children and youth with special health care needs (CYSHCN) and disabilities. We connect a network of family-led organizations across the United States that provide support to families of CYSHCN.
We promote partnership with youth and families at all levels of health care, from individual care to policy and decision-making, to improve policies and systems of care for children.
Do you have a child or teen who has special health care needs or disabilities? Find support in your local community.
¿Tiene un niño o adolescente que tiene necesidades especiales de salud o discapacidades? Haga clic aquí para buscar ayuda.
F2Fs in U.S. Territories:
F2Fs and FVAOs serving Tribal Communities:
Family Voices News
Your Input Sought/Of Possible Interest/Announcement (Washington Update, October 3, 2018)
Your Input Sought Survey on Attending Genetics Appointments after Referrals Open until Oct. 12 The NYMAC (New York-Mid-Atlantic Regional Genetics Network) -- one of seven regional networks in the country funded by the Health Resources and Services Administration – is...
Upcoming Webinars from the Field (Washington Update, September 26, 2018)
NEW All of Us Research Program: A Breakthrough for Minority Health Wednesday, September 26, 3:00-4:00 ET National Hispanic Medical Association SERIES: As part of its Health Reform: Beyond the Basics project, the Center on Budget and Policy Priorities is presenting a...
For Those Assisting Victims of Hurricane Florence (September 26, 2018)
[From Health Insurance Marketplace email of 9/20/18. No URL found for this info.] Attention Assisters Who Are Helping Consumers Impacted By Hurricane Florence: Special Enrollment Period Available for Victims of 2018 Hurricane Florence On August 9, 2018, CMS released...
THE COURTS (Washington Update, September 26, 2018)
Coverage of Transgender Health Care A federal court in Minnesota has ruled that it is unlawful to deny insurance coverage for transgender health care under the Affordable Care Act and federal laws prohibiting sex discrimination. The case could have national...
THE ADMINISTRATION — IMMIGRATION (Washington Update, September 26, 2018)
Administration Issues Proposed “Public Charge” Rule For many months it has been expected that the administration would issue a rule redefining what it means to be a “public charge” for purposes of deciding which immigrants should be allowed to enter or stay in the...
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