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Family Voices is a national family-led organization of families and friends of children and youth with special health care needs (CYSHCN) and disabilities. We connect a network of family organizations across the United States that provide support to families of CYSHCN.
We promote partnership with families at all levels of health care–individual and policy decision-making levels—in order to improve health care services and policies for children.
Do you have a child or teen who has special health care needs or disabilities? Find support in your local community.
¿Tiene un niño o adolescente que tiene necesidades especiales de salud o discapacidades? Haga clic aquí para buscar ayuda.
F2Fs in U.S. Territories:
F2Fs and FVAOs serving Tribal Communities:
Family Voices News
THE COURTS (Washington Update, September 19, 2018)
New Suit Challenges “Short-Term, Limited-Duration” Plans On September 14, several patient organizations filed suit in the D.C. Federal District Court to challenge the validity of the CMS regulation allowing the sale of “short-term, limited-duration” insurance...
THE ADMINISTRATION (Washington Update, September 19, 2018)
New Associate Head for the Maternal and Child Health Bureau The administration has announced that Michael D. Warren, MD, MPH, FAAP, will become the Associate Administrator of the Health Resources and Services Administration’s (HRSA’s) Bureau of Maternal and Child...
CONGRESS (Washington Update, September 19, 2018)
There is a lot of action on the Senate side of the Capitol at the moment... Senate Opioid Legislation On September 17, the Senate passed, by a vote of 99-1, legislation to address the opioid epidemic. (Senator Mike Lee, R-UT, was the “NO” vote.) The legislation was a...
MEDICAID/CHIP NEWS, INFORMATION, RESOURCES (Washington Update, September 19, 2018)
Health Coverage Matters for Children: The Role of Medicaid in the Healthy Development of America's Children (New Issue Brief from Families USA: Sept. 2018) WORTH REPEATING: Infographic: Medicaid and CYSHCN The Catalyst Center has created a one-page infographic...
ACA NEWS: Navigator Grants (September 19, 2018)
Navigator Grants On September 12, the administration announced the award of $10 million (total) for 39 grants for “Navigators,” which help consumers select ACA health plans in states with federally-facilitated Exchanges. The total amount awarded reflects a decrease of...