Congress is in recess until November 13. This is a good time to visit your Senators and Representatives in their local offices, or attend public events, to educate them about children with special health care needs, the needs of their families, and your state’s programs to help CYSHCN and their families, including Family-to-Family Health Information Centers and the Title V block grant. You can find contact information for your Members of Congress at You can find town halls and other public events at which your Members of Congress will appear at

Republicans Look to Safety-Net Programs as Deficit Balloons
(New York Times, 10/26/18)
This article talks about possible congressional action after the election. As has been the case historically, many Members of Congress think that it important to trim the deficit by cutting “entitlement” spending. The most expensive entitlements are Social Security, Medicare and Medicaid. Given the popularity of Social Security and Medicare, Medicaid is a likely target for changes, as it was last year when Congress considered proposals to reduce federal Medicaid spending by funding for the program via a block grant or per capita cap.

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Our Vision

With families at the center of health care, all children and youth reach their full potential and health disparities are eliminated.

Our Mission

Family Voices is a national organization and grassroots network of families and friends of children and youth with special health care needs and disabilities that promotes partnership with families—including those of cultural, linguistic and geographic diversity—in order to improve health care services and policies for children.

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