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Family Voices is a national family-led organization of families and friends of children and youth with special health care needs (CYSHCN) and disabilities. We connect a network of family organizations across the United States that provide support to families of CYSHCN.
We promote partnership with families at all levels of health care–individual and policy decision-making levels—in order to improve health care services and policies for children.
Do you have a child or teen who has special health care needs or disabilities? Find support in your local community.
¿Tiene un niño o adolescente que tiene necesidades especiales de salud o discapacidades? Haga clic aquí para buscar ayuda.
F2Fs in U.S. Territories:
F2Fs and FVAOs serving Tribal Communities:
Family Voices News
Other News, Information, and Resources (Washington Update, November 8, 2018)
WORTH REPEATING: State Strategies for Shared Plans of Care to Improve Care Coordination for Children and Youth with Special Health Care Needs (National Academy for State Health Policy, 10/29/18) Proposed rule on immigrant “Public Charge” determinations Please see the...
Your Input Sought/Announcements/Of Possible Interest (Washington Update November 8, 2018)
Your Input Sought Nominations Sought for Federal Family Caregiving Advisory Council – due Dec. 3 The Secretary of Health & Human Services (HHS) has posted a Notice requesting nominations for individuals to serve on the Family Caregiving Advisory Council, which was...
Resources for Open Enrollment (Washington Update, October 31, 2018)
2019 Open Enrollment Runs from November 1 through December 15, 2018 Plans sold during Open Enrollment start January 1, 2019. After December 15, consumers can enroll in 2019 health insurance only if they qualify for a Special Enrollment Period. Federal Health Insurance...
Webinars from the Field (Washington Update, October 31, 2018)
NEW Guardianship: Consider the Alternatives Wednesday, October 31, 12:00-1:00 pm ET Vermont Family Network NEW The NIH All of Us Research Program and Precision Medicine: Reflections from a Rural State Wednesday, October 31, 2:00-3:30 pm ET University of Montana Rural...
The Administration (Washington Update, October 31, 2018)
New HRSA Data Website The Health Resources and Services Administration (HRSA) has unveiled a new data and information website at https://data.hrsa.gov/. The website user can find health centers and health shortage areas, and can obtain fact sheets about HRSA...
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