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Family Voices is a national nonprofit led by families and friends of children and youth with special health care needs (CYSHCN) and disabilities. We connect a network of family-led organizations across the United States that provide support to families of CYSHCN.
We promote partnership with youth and families at all levels of health care, from individual care to policy and decision-making, to improve policies and systems of care for children.
Do you have a child or teen who has special health care needs or disabilities? Find support in your local community.
¿Tiene un niño o adolescente que tiene necesidades especiales de salud o discapacidades? Haga clic aquí para buscar ayuda.
Find help in your community
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Family Voices Affiliate Organizations (FVAOs)
What are Family Voices Affiliate Organizations?
A Family Voices Affiliate Organization (FVAO) is a statewide/territory-wide/tribal, parent/family-led non-profit organization, with a Board composed of a majority of family members of CYSHCN, that meets the requirements of an FVAO and works to advance the mission, vision, and principles of Family Voices. FVAOs are a critical part of our collective effort to keep families at the center of children’s health care.
There is an FVAO in most states, and only one FVAO is approved per state. In many cases, the FVAO is the same organization that serves as the Family-to-Family Health Information Center (F2F) in that state, though not in all cases.
FVAOs stay connected through a listserv, national meetings, monthly national calls, and quarterly regional calls. The affiliate network works with the Family Voices policy team to inform our policy work and take collective action.
If your organization is interested in becoming a Family Voices affiliate, please contact Ian Whitney for more information and an application.
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Family-to-Family Health Information Centers (F2Fs)
What are F2Fs?
Family-to-Family Health Information Centers (F2Fs) are family-led organizations that support families of children and youth with special health care needs (CYSHCN). Family Voices provides technical assistance to the F2Fs through the Family Engagement and Leadership in Systems of Care grant, funded through 2028 through the Health Resources and Services Administration (HRSA) Maternal Child Health Bureau.
The Maternal and Child Health Bureau (MCHB) funds F2Fs in every state, the District of Columbia, five US territories, and three F2Fs serving American Indians and Alaska Natives.
Each F2F is staffed by highly skilled, knowledgeable families with first-hand experience of the challenges faced by CYSHCN and their families. These uniquely qualified staff provide critical support to families caring for CYSHCN, particularly families of children with complex needs and those from communities that experience worse outcomes.
F2Fs also help healthcare providers, state and federal agencies, and legislators understand and respond to the needs of CYSHCN and their families.
Find a Family-to-Family Health Information Center (F2F) or Family Voices Affiliate Organization (FVAO)
F2Fs and FVAOs in U.S. Territories:
F2Fs and FVAOs serving Tribal Communities:
Family Voices News
TRICARE (Washington Update, January 30, 2019)
Learn More about Your Benefit with 2019 TRICARE Resources Jan. 22, 2019 Save Money at the Pharmacy: Understanding TRICARE Prescription Drug Types Jan. 16, 2019 WORTH REPEATING: Government Shutdown: Some Allotment Payments Affected The partial government shutdown...
Other News, Information, and Resources (Washington Update, January 30, 2019)
From the Administration on Community Living (ACL): Learn more about ACL's Business Acumen Initiative. Medicaid, Medicare, Accountable Care Organizations, private insurers, and other private pay models offer opportunities for community-based organizations to tap into...
Your Input Sought/Of Possible Interest (Washington Update, January 30, 2019)
YOUR INPUT SOUGHT NEW Pain Management Task Force Draft Report – Due April 1, 2019 The Comprehensive Addiction and Recovery Act of 2016 (CARA), requires that the public be given at least ninety (90) days to submit comments on any proposed updates and recommendations...
Webinars from the Field (Washington Update, January 19, 2019)
Integrating Nurses into Complex Care Teams Thursday, January 17, 1:00 pm ET Better Care Playbook NEW CLC Peer Learning Exchange: Building Health Equity in Systems of Care by Engaging Diverse Families, Youth, and Community Organizations Thursday, January 17, 2:00-3:00...
The “Shut-Down” (Washington Update, January 19, 2019)
As most readers probably know, a partial government “shut-down” has been caused by a stand-off between congressional Democrats and President Trump over whether to fund a “wall” on the nation’s southern border. At this point, it is not clear how or when the situation...