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Family Voices is a national nonprofit led by families and friends of children and youth with special health care needs (CYSHCN) and disabilities. We connect a network of family-led organizations across the United States that provide support to families of CYSHCN.
We promote partnership with youth and families at all levels of health care, from individual care to policy and decision-making, to improve policies and systems of care for children.
Do you have a child or teen who has special health care needs or disabilities? Find support in your local community.
¿Tiene un niño o adolescente que tiene necesidades especiales de salud o discapacidades? Haga clic aquí para buscar ayuda.
F2Fs in U.S. Territories:
F2Fs and FVAOs serving Tribal Communities:
Family Voices News
Medicaid/Affordable Care Act/TRICARE News (Washington Update, March 6, 2019)
MEDICAID RESOURCES REMINDER: Approved and pending Medicaid waiver applications can be found on gov. The Kaiser Family Foundation regularly updates its state-by-state §1115 Medicaid Waiver Tracker, and also provides related waiver resources and definitions. AFFORDABLE...
Other News, Information, and Resources (Washington Update, March 6, 2019)
News CMS Updates Consumer Resources for Comparing Hospital Quality (Excerpts from a CMS press announcement, 2/28/19) The Centers for Medicare & Medicaid Services (CMS) has updated hospital performance data on the Hospital Compare website and on data.medicare.gov....
Your Input Sought/Of Possible Interest (Washington Update, March 6, 2019)
YOUR INPUT SOUGHT NEW FEMA National Advisory Council – Due March 15, 2019 The Federal Emergency Management Agency (FEMA) is accepting applications until March 15, 2019, for 12 open positions on its National Advisory Council. They are seeking one person to fill the...
Webinars from the Field (Washington Update, February 27, 2019)
Starting and Sustaining a Youth Advisory Board, Part 1: Youth Voice Wednesday, February 27, 12:00-1:00 pm ET Family Voices This webinar series is especially for organizations that seek to develop a youth advisory board. Communication for a Nuclear or Radiological...
The Courts (Washington Update, February 27, 2019)
Judge Considers Expanding Child Separation Case (Associated Press, 2/21/19)
Encourage confidence to act