Not a lot happened during the past week in Washington…with respect to health care, that is.  The president signed the Autism CARES Act but, otherwise, policymakers and politicos have been preoccupied with other matters (i.e., the impeachment inquiry), which may interfere with the ability of the two parties and two branches of government to get much accomplished in the way of legislation.  In the judicial branch, however, a notable decision has been rendered: a federal appeals court ruled that the Department of Justice can move forward with a suit against Florida regarding the placement of children in nursing homes.  With respect to regulations and resources, this Update includes (among other things) information about: The Roadmap to Behavioral Health (for families); a statement from the FDA about patient engagement in medical device clinical investigations; quality ratings for health plans sold in the Marketplace; and a Final Rule on “Patients Over Paperwork” (in the Medicaid section below). And, please note…

IT’S RECESS! Members of Congress are home on a two-week recess (through October 14), providing an opportunity for you to see them in their local offices or at town halls or other public events. It’s a great chance to educate them about CYSHCN and their families, and about your Family-to-Family Health Information Center or other programs.  To get contact information for your Members of Congress, see, or and For a list of public events in your area, see the Town Hall Project.


Read the rest of this week’s Washington Update here!

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Our Vision

With families at the center of health care, all children and youth reach their full potential and health disparities are eliminated.

Our Mission

Family Voices is a national organization and grassroots network of families and friends of children and youth with special health care needs and disabilities that promotes partnership with families—including those of cultural, linguistic and geographic diversity—in order to improve health care services and policies for children.

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