Banner with the photos of families and children and the Family Voices tagline, Keeping families at the center of children's health care

Family Voices is a national family-led organization of families and friends of children and youth with special health care needs (CYSHCN) and disabilities.  We connect a network of family organizations across the United States that provide support to families of CYSHCN. 

We promote partnership with families at all levels of health care–individual and policy decision-making levels—in order to improve health care services and policies for children.

Do you have a child or teen who has special health care needs or disabilities? Find support in your local community.

¿Tiene un niño o adolescente que tiene necesidades especiales de salud o discapacidades? Haga clic aquí para buscar ayuda.

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Family Voices News

CONGRESS (Washington Update, February 20, 2019)

ACE Kids Act Introduced in the House and Senate During the last Congress, the Advancing Care for Exceptional Kids Act (ACE Kids Act) was passed by the House as part of a larger bill, but did not make it to the Senate. Since it is a new Congress, all legislation must...

MEDICAID/CHIP NEWS, INFORMATION, AND RESOURCES (February 20, 2019)

MEDICAID WAIVERS Updated 1915(c) Waiver Application On January 28, 2019, CMS released a revised application and technical guide for Medicaid 1915(c) waivers, used to provide home-and community based services. According to this information provided by the National...

TRICARE (Washington Update, February 20, 2019)

Understanding Your TRICARE Explanation of Benefits (Benefit Update, 2/19/19) WORTH REPEATING: Final Rule on Exceptional Family Member Program (EFMP) On February 13, the Department of Defense (DoD) issued a final rule (PDF) about the Exceptional Family Member Program...

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Our Vision

With families at the center of health care, all children and youth reach their full potential and health disparities are eliminated.

Our Mission

Family Voices is a national organization and grassroots network of families and friends of children and youth with special health care needs and disabilities that promotes partnership with families—including those of cultural, linguistic and geographic diversity—in order to improve health care services and policies for children.

In honor of