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Family Voices is a national nonprofit led by families and friends of children and youth with special health care needs (CYSHCN) and disabilities. We connect a network of family-led organizations across the United States that provide support to families of CYSHCN.
We promote partnership with youth and families at all levels of health care, from individual care to policy and decision-making, to improve policies and systems of care for children.
Do you have a child or teen who has special health care needs or disabilities? Find support in your local community.
¿Tiene un niño o adolescente que tiene necesidades especiales de salud o discapacidades? Haga clic aquí para buscar ayuda.
F2Fs in U.S. Territories:
F2Fs and FVAOs serving Tribal Communities:
Family Voices News
Congress (Washington Update, April 3, 2019)
House-Passed Medicaid Bill Includes ACE Kids Act; Additional MFP Funds On March 25, the House passed the Medicaid Services Investment and Accountability Act of 2019 (H.R.1839). The bill, which has been transmitted to the Senate, includes an updated version of the ACE...
Medicaid News, Information, and Resources (Washington Update, April 3, 2019)
New Guidance on HCBS Settings Rule As explained in a March 22 press release, the Centers for Medicare and Medicaid Services (CMS) has issued updated guidance to State Medicaid Directors on implementation of the 2014 Home and Community Based Services (HCBS) regulation....
TRICARE News (Washington Update, April 3, 2019)
From the TRICARE Benefits Updates: Your Environment and Your Body: How Exposure to Mold and Lead May Impact Your Health (4/1/19) Who You See for Care Matters: TRICARE Provider Types (3/29/29) Bring Your Tricare Benefit Questions to April 4 Webinar (3/26/29) – See...
Other News, Information, and Resources (Washington Update, April 3, 2019)
From the Agencies: From the Agency for Healthcare Research and Quality (AHRQ) - A new mobile app for smartphones, tablets, and laptop computers to help patients prepare for medical visits. The AHRQ Question Builder app - available at no charge from iTunes and Google...
Your Input Sought/Of Possible Interest (Washington Update, April 3, 2019)
YOUR INPUT SOUGHT Survey to Improve Caregiver Hospital Experience The Massachusetts Institute of Technology (MIT) is analyzing the hospital visitor experience. If you are someone in the United States that has either visited a loved one in a hospital OR identifies as a...
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