Banner with the photos of families and children and the Family Voices tagline, Keeping families at the center of children's health care

Family Voices is a national nonprofit led by families and friends of children and youth with special health care needs (CYSHCN) and disabilities.  We connect a network of family-led organizations across the United States that provide support to families of CYSHCN.

We promote partnership with youth and families at all levels of health care, from individual care to policy and decision-making, to improve policies and systems of care for children.

Do you have a child or teen who has special health care needs or disabilities? Find support in your local community.

¿Tiene un niño o adolescente que tiene necesidades especiales de salud o discapacidades? Haga clic aquí para buscar ayuda.

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Family Voices News

Washington Update Special Edition: June 4 House Hearing on F2Fs

As reported in the May 29 Update, bipartisan bills have been introduced in both the House and Senate to extend F2F funding for five more years at the current level of $6 million per year.  Without such legislation, funding for the program will expire at the end of the...

Washington Update May 29, 2019

Congress is currently taking its Memorial Day recess to visit with constituents at home. Before they left town, however, there was lots of activity in the Capitol. Bipartisan bills were introduced in both the House and Senate to extend funding for Family-to-Family...

Bipartisan House and Senate Bills Introduced to Extend F2F Funding

Representatives Mikie (Michelle) Sherrill (D-NJ) and Fred Upton (R-MI) introduced the Family-to-Family Reauthorization Act of 2019 (H.R. 2822), which will extend funding for Family-to-Family Health Information Centers (F2Fs) for an additional five years, through...

Webinars from the Field (Washington Update, April 3, 2019)

Disparities in Genetic Services & Privacy Tuesday, April 9, 12:00-1:00 pm ET National Society of Genetic Counselors The InCK (Federal Integrated Care for Kids) Model and Prevention Tuesday, April 9, 2:00-3:15 pm ET InCK Marks Network Pursuing Health Equity: Start...

The Courts (Washington Update, April 3, 2019)

In the past couple weeks, there have been significant developments in the healthcare legal sphere. One federal district court invalidated the administration’s approval of waivers that would have permitted Kentucky and Arkansas to establish Medicaid work requirements....

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Our Vision

All children, youth, and families, especially those with special health care needs and disabilities, experience their best health and quality of life.

Our Mission

Family Voices is a family-led organization that transforms systems of care to work better for all children and youth, especially those with special health care needs or disabilities. By putting families at the forefront and centering their leadership and lived expertise, we build a culture that includes everyone and fosters equitable outcomes.

Donate by mail

To donate by mail, your check payable to Family Voices can be mailed to us at:
Family Voices
561 Virginia Rd.
Bldg. 4, Suite 300
Concord, MA 01742

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