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Family Voices is a national family-led organization of families and friends of children and youth with special health care needs (CYSHCN) and disabilities. We connect a network of family organizations across the United States that provide support to families of CYSHCN.
We promote partnership with families at all levels of health care–individual and policy decision-making levels—in order to improve health care services and policies for children.
Do you have a child or teen who has special health care needs or disabilities? Find support in your local community.
¿Tiene un niño o adolescente que tiene necesidades especiales de salud o discapacidades? Haga clic aquí para buscar ayuda.
F2Fs in U.S. Territories:
F2Fs and FVAOs serving Tribal Communities:
Family Voices News
Other News, Information, and Resources (Washington Update, April 3, 2019)
From the Agencies: From the Agency for Healthcare Research and Quality (AHRQ) - A new mobile app for smartphones, tablets, and laptop computers to help patients prepare for medical visits. The AHRQ Question Builder app - available at no charge from iTunes and Google...
Your Input Sought/Of Possible Interest (Washington Update, April 3, 2019)
YOUR INPUT SOUGHT Survey to Improve Caregiver Hospital Experience The Massachusetts Institute of Technology (MIT) is analyzing the hospital visitor experience. If you are someone in the United States that has either visited a loved one in a hospital OR identifies as a...
Webinars from the Field (Washington Update, March 14, 2019)
Identifying and Serving Children with Health Complexity: Spotlight on Pediatric Care Together Thursday, March 14, 1:30-2:30 pm ET Lucile Packard Foundation for Children’s Health The webinar will be a discussion about the report, Identifying and Serving Children with...
The Administration (Washington Update, March 14, 2019)
President’s Budget Proposal On Monday, March 11, the president released his budget proposal for FY 2020, which begins on October 1, 2019. Among other things, his budget proposes to turn Medicaid into a state block grant, and mandate that states establish work...
Congress (Washington Update, March 14, 2019)
Medical Expense Deduction On March 4, Senators Chuck Grassley (R-IA) and Ron Wyden (D-OR), Finance Committee Chairman and Ranking Member, respectively, introduced the Tax Extender and Disaster Relief Act of 2019 (S. 617). The bill would extend, for an additional two...
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