Survey to Improve Caregiver Hospital Experience
The Massachusetts Institute of Technology (MIT) is analyzing the hospital visitor experience. If you are someone in the United States that has either visited a loved one in a hospital OR identifies as a primary caregiver for someone with a condition, you are eligible to participate in this research study. The 3-minute survey is intended to help improve caregiver hospital stays. To take the survey, click HERE.

Electronic Health Information – due May 3, 2019
On Monday, February 11, 2019, the Centers for Medicare & Medicaid Services (CMS) released a proposed rule intended to facilitate the use of electronic health information and promote patient access to and control over their health information. See the CMS Fact Sheet CMS will accept comments on the major provisions in this proposed rule until early April (exact date will be updated upon posting at the Federal Register).


China Announces Ban on All Types of Fentanyl, Fulfilling Promise to President Trump (Energy & Commerce Committee Republicans press release, 4/1/99).

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Our Vision

With families at the center of health care, all children and youth reach their full potential and health disparities are eliminated.

Our Mission

Family Voices is a national organization and grassroots network of families and friends of children and youth with special health care needs and disabilities that promotes partnership with families—including those of cultural, linguistic and geographic diversity—in order to improve health care services and policies for children.

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