Banner with the photos of families and children and the Family Voices tagline, Keeping families at the center of children's health care

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Family Voices is a national nonprofit led by families and friends of children and youth with special health care needs (CYSHCN) and disabilities.  We connect a network of family-led organizations across the United States that provide support to families of CYSHCN.

We promote partnership with youth and families at all levels of health care, from individual care to policy and decision-making, to improve policies and systems of care for children.

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About Family Voices

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Our Team

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Partnerships

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Programs

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Resources

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Measuring Family Engagement

Haga clic aquí para obtener recursos en español

Do you have a child or teen who has special health care needs or disabilities? Find support in your local community.

¿Tiene un niño o adolescente que tiene necesidades especiales de salud o discapacidades? Haga clic aquí para buscar ayuda.

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Click on the map or select a state or territory:

Family Voices News

CMS Announces Changes to 1115 Waiver Demonstrations

Jul 22, 2025

On July 17, the Centers for Medicare & Medicaid Services (CMS) announced a change to 1115 waivers that change how states can use Medicaid funds for enrollment of beneficiaries and for job training or employment activities. According to CMS, this change is “to...

New Resources – July 2025

Jul 22, 2025

Check out resources from Family Voices and our partners. Resources from Family Voices’ policy team are in both English and Spanish, with more languages in development. Partner resources are mainly in English. Resources on Authentically Engaging Youth in the Policy...

Upcoming Events List – June 2025

Jun 25, 2025

July 8 – 10 – Learn more and register for the 2025 Training Institutes: Building a World Where Young People Thrive. Join a national gathering of experts and leaders working at the federal, state, and local levels to transform public systems, programs, and services for...

Lista de próximos eventos – Junio del 2025

Jun 25, 2025

8 al 10 de julio – Para más información e inscripciones para los Institutos de Adiestramientos del 2025: Construyendo un mundo donde los jóvenes prosperen (2025 Training Institutes: Building a World Where Young People Thrive). Únase a una reunión nacional de expertos...

New Resource – June 2025

Jun 25, 2025

Check out our newly updated public policy page. The page currently includes our strategic policy priorities, recent policy briefs and blogs, and more. New resources are be in English and Spanish, with more languages in development. We are working on adding more...

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Our Vision

All children, youth, and families, especially those with special health care needs and disabilities, experience their best health and quality of life.

Our Mission

Family Voices is a family-led organization that transforms systems of care to work better for all children and youth, especially those with special health care needs or disabilities. By putting families at the forefront and centering their leadership and lived expertise, we build a culture that includes everyone and fosters equitable outcomes.

Donate by mail

To donate by mail, your check payable to Family Voices can be mailed to us at:
Family Voices
P.O. Box 3162
South Attleboro, MA 02730

In honor of
The Close the Gap campaign is funded by Dr. David Nichols and Mayme Boyd.
Visit familyvoices.org/closethegap to learn more.