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Family Voices is a national nonprofit led by families and friends of children and youth with special health care needs (CYSHCN) and disabilities. We connect a network of family-led organizations across the United States that provide support to families of CYSHCN.
We promote partnership with youth and families at all levels of health care, from individual care to policy and decision-making, to improve policies and systems of care for children.
Do you have a child or teen who has special health care needs or disabilities? Find support in your local community.
¿Tiene un niño o adolescente que tiene necesidades especiales de salud o discapacidades? Haga clic aquí para buscar ayuda.
F2Fs in U.S. Territories:
F2Fs and FVAOs serving Tribal Communities:
Family Voices News
Congress: House Passes Several Health Bills (Washington Update July 25, 2018)
As reported by the House Energy and Commerce Committee, the House passed several bipartisan health-related bills this week: The Palliative Care and Hospice Education and Training Act (R. 1676), which would direct HHS to award grants to improve the training of...
Congress: “Medicare-for-All” Caucus Launched in House (Washington Update July 25, 2018)
On July 20, House Democrats launched a "Medicare-for-All" congressional caucus with the intention of educating other lawmakers and staff on the basics of a government-run, single-payer health care system, and of examining how other such systems operate in other...
Guidance on Medicaid Provider Directories (Washington Update July 25, 2018)
On July 17, the Center for Medicaid and CHIP Services issued a State Medicaid Directors letter (SMD # 18-007) setting forth detailed directions to states for implementing the requirements of Section 5006 of the 21st Century Cures Act (Cures Act). Section 5006 of the...
Medicaid Waiver News (Washington Update July 25, 2018)
Kentucky Waiver As reported in the July 3 Washington Update (under “Courts”), a federal court vacated the Department of Health and Human Services (HHS) approval of a Kentucky Medicaid waiver proposal to impose work requirements on Medicaid beneficiaries. The ruling...
Affordable Care Act (ACA) News (Washington Update July 25, 2018)
Trump Administration Preparing Fix for Obamacare Risk Payments (Bloomberg, 7/19/18) As reported earlier, the administration announced that it would no longer pay insurance companies the risk-adjustment payments established by the Affordable Care Act (ACA). These...
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