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Family Voices is a national nonprofit led by families and friends of children and youth with special health care needs (CYSHCN) and disabilities. We connect a network of family-led organizations across the United States that provide support to families of CYSHCN.
We promote partnership with youth and families at all levels of health care, from individual care to policy and decision-making, to improve policies and systems of care for children.
Do you have a child or teen who has special health care needs or disabilities? Find support in your local community.
¿Tiene un niño o adolescente que tiene necesidades especiales de salud o discapacidades? Haga clic aquí para buscar ayuda.
F2Fs in U.S. Territories:
F2Fs and FVAOs serving Tribal Communities:
Family Voices News
Your Input Sought/Of Possible Interest (Washington Update, September 12, 2018)
Your Input Sought Survey on Attending Genetics Appointments after Referrals Open until Oct. 12 The NYMAC (New York-Mid-Atlantic Regional Genetics Network) -- one of seven regional networks in the country funded by the Health Resources and Services Administration – is...
Upcoming Webinars from the Field (Washington Update, August 29, 2018)
NEW/TODAY Three-Topic Marketplace Webinar (for Navigators and Certified Application Counselors) Wednesday, August 29, 2:00-3:00 pm ET Centers for Medicare and Medicaid Services (CMS) Intended for Topics: Certified Application Counselor Program Refresh Coverage Options...
The Courts (Washington Update, August 29, 2018)
On September 4, the Senate Judiciary Committee will begin hearings on the confirmation of Judge Brett Kavanaugh to be an Associate Justice on the Supreme Court. The following day a hearing will begin in the case of Texas v. Azar (explained), in which twenty states...
Congress: Senate Republicans Introduce Bill on Pre-Existing Conditions (Washington Update, August 29, 2018)
On August 23, Senator Thom Tillis (R-NC) and nine other Republican Senators, introduced the ‘‘Ensuring Coverage for Patients with Pre-Existing Conditions Act’’ (S. 3388). [See the bill text; legislative status and cosponsors; Tillis press release.] Among the...
Congress: Budget and Appropriations (Washington Update, August 29, 2018)
On August 23, the Senate passed (by 85-7) an $856.9 billion appropriations bill (H.R. 6157) to fund the Department of Defense and the Departments of Labor, Health and Human Services, and Education (“Labor-HHS”) for FY 2019, which begins on October 1, 2018. The bill...
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