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Family Voices is a national family-led organization of families and friends of children and youth with special health care needs (CYSHCN) and disabilities. We connect a network of family organizations across the United States that provide support to families of CYSHCN.
We promote partnership with families at all levels of health care–individual and policy decision-making levels—in order to improve health care services and policies for children.
Do you have a child or teen who has special health care needs or disabilities? Find support in your local community.
¿Tiene un niño o adolescente que tiene necesidades especiales de salud o discapacidades? Haga clic aquí para buscar ayuda.
F2Fs in U.S. Territories:
F2Fs and FVAOs serving Tribal Communities:
Family Voices News
The Courts (Washington Update, August 29, 2018)
On September 4, the Senate Judiciary Committee will begin hearings on the confirmation of Judge Brett Kavanaugh to be an Associate Justice on the Supreme Court. The following day a hearing will begin in the case of Texas v. Azar (explained), in which twenty states...
Congress: Senate Republicans Introduce Bill on Pre-Existing Conditions (Washington Update, August 29, 2018)
On August 23, Senator Thom Tillis (R-NC) and nine other Republican Senators, introduced the ‘‘Ensuring Coverage for Patients with Pre-Existing Conditions Act’’ (S. 3388). [See the bill text; legislative status and cosponsors; Tillis press release.] Among the...
Congress: Budget and Appropriations (Washington Update, August 29, 2018)
On August 23, the Senate passed (by 85-7) an $856.9 billion appropriations bill (H.R. 6157) to fund the Department of Defense and the Departments of Labor, Health and Human Services, and Education (“Labor-HHS”) for FY 2019, which begins on October 1, 2018. The bill...
Integrated Care for Kids (InCK) Model (Washington Update, August 29, 2018)
On August 24, the Centers for Medicare & Medicaid Services’ Innovation Center (CMMI) unveiled the Integrated Care for Kids (InCK) Model. Although it is described as “part of a multi-pronged strategy to combat the nation’s opioid crisis,” the Model would apply more...
Medicaid Tools for Responding to Public Health Crises and Natural Disasters (Washington Update, August 29, 2018)
To help Medicaid agencies prepare for public health crises and natural disasters, the Centers for Medicare & Medicaid Services (CMS) Coverage Learning Collaborative developed a set of tools on the strategies available to support Medicaid operations and enrollees...
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