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Family Voices is a national family-led organization of families and friends of children and youth with special health care needs (CYSHCN) and disabilities. We connect a network of family organizations across the United States that provide support to families of CYSHCN.
We promote partnership with families at all levels of health care–individual and policy decision-making levels—in order to improve health care services and policies for children.
Do you have a child or teen who has special health care needs or disabilities? Find support in your local community.
¿Tiene un niño o adolescente que tiene necesidades especiales de salud o discapacidades? Haga clic aquí para buscar ayuda.
F2Fs in U.S. Territories:
F2Fs and FVAOs serving Tribal Communities:
Family Voices News
Your Input Sought/Announcement/Of Possible Interest (Washington Update September 26, 2018)
Your Input Sought Seeking Parent Input on What Doctors Should Know in Caring for Children The Council on Medical Student Education in Pediatrics is revising its General Pediatric Clerkship Curriculum. The foundation includes “The skills, attitudes, and knowledge that...
Upcoming Webinars from the Field (Washington Update, September 19, 2018)
NEW National Preparedness Month: Children in Public Health Emergencies Wednesday, September 19, 1:00 pm ET Emergency Partners Information Connection (EPIC), Centers for Disease Control and Prevention Sickle Cell Transitional Care from Childhood to Adulthood: The Role...
THE COURTS (Washington Update, September 19, 2018)
New Suit Challenges “Short-Term, Limited-Duration” Plans On September 14, several patient organizations filed suit in the D.C. Federal District Court to challenge the validity of the CMS regulation allowing the sale of “short-term, limited-duration” insurance...
THE ADMINISTRATION (Washington Update, September 19, 2018)
New Associate Head for the Maternal and Child Health Bureau The administration has announced that Michael D. Warren, MD, MPH, FAAP, will become the Associate Administrator of the Health Resources and Services Administration’s (HRSA’s) Bureau of Maternal and Child...
CONGRESS (Washington Update, September 19, 2018)
There is a lot of action on the Senate side of the Capitol at the moment... Senate Opioid Legislation On September 17, the Senate passed, by a vote of 99-1, legislation to address the opioid epidemic. (Senator Mike Lee, R-UT, was the “NO” vote.) The legislation was a...
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