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Family Voices is a national family-led organization of families and friends of children and youth with special health care needs (CYSHCN) and disabilities. We connect a network of family organizations across the United States that provide support to families of CYSHCN.
We promote partnership with families at all levels of health care–individual and policy decision-making levels—in order to improve health care services and policies for children.
Do you have a child or teen who has special health care needs or disabilities? Find support in your local community.
¿Tiene un niño o adolescente que tiene necesidades especiales de salud o discapacidades? Haga clic aquí para buscar ayuda.
F2Fs in U.S. Territories:
F2Fs and FVAOs serving Tribal Communities:
Family Voices News
Your Input Sought/Announcement/Of Possible Interest (Washington Update, October 11, 2018)
Your Input Sought Survey on Attending Genetics Appointments after Referrals Open until Oct. 12 The NYMAC (New York-Mid-Atlantic Regional Genetics Network) -- one of seven regional networks in the country funded by the Health Resources and Services Administration – is...
For Those Assisting Victims of Hurricane Florence (Washington Update, October 3, 2018)
[From Health Insurance Marketplace email of 9/20/18. No URL found for this info.] Attention Assisters Who Are Helping Consumers Impacted By Hurricane Florence: Special Enrollment Period Available for Victims of 2018 Hurricane Florence On August 9, 2018, CMS released...
Webinars from the Field (Washington Update, October 3, 2018)
Show Me the Money -- Innovative Funding Approaches to Promote Health Equity Wednesday, October 3, 1:00-2:30 pm ET Trust for America’s Health/Dialogue4Health/Public Health Institute NEW Twitter chat #HealthyLatinos Thursday, October 4, 2:00 pm ET Follow @MinorityHealth...
THE ADMINISTRATION (Washington Update, October 3, 2018)
Julie Hocker joins ACL as Commissioner of the Administration on Disabilities (Administration on Community Living Newsroom, 10/1/18). More on the Proposed “Public Charge” Rule For many months it has been expected that the administration would issue a rule redefining...
CONGRESS: Opioid Legislation/Appropriations (Washington Update, October 3, 2018)
Opioid Legislation On September 28, by a vote of 393-8, the House passed a bill to address the nation’s opioid epidemic – the Substance Use-Disorder Prevention that Promotes Opioid Recovery and Treatment for Patients and Communities Act, or the SUPPORT for Patients...
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