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Family Voices is a national nonprofit led by families and friends of children and youth with special health care needs (CYSHCN) and disabilities. We connect a network of family-led organizations across the United States that provide support to families of CYSHCN.
We promote partnership with youth and families at all levels of health care, from individual care to policy and decision-making, to improve policies and systems of care for children.
Do you have a child or teen who has special health care needs or disabilities? Find support in your local community.
¿Tiene un niño o adolescente que tiene necesidades especiales de salud o discapacidades? Haga clic aquí para buscar ayuda.
F2Fs in U.S. Territories:
F2Fs and FVAOs serving Tribal Communities:
Family Voices News
Your Input Sought/Announcements/Of Possible Interest (Washington Update, December 13, 2018)
YOUR INPUT SOUGHT Comments on New Standards for ACA Innovation Waivers (§1332 waivers) – due Dec. 24 On October 22, the Centers for Medicare & Medicaid Services (CMS) and the U.S. Department of the Treasury (collectively, the Departments) released new guidance...
CMS Response to Typhoon Yutu (Washington Update, December 13, 2018)
CMS Acts to Help with Typhoon Yutu Emergency Response From the Centers for Medicare and Medicaid Services (CMS) The actions will include temporarily waiving or modifying certain Medicare, Medicaid, and Children’s Health Insurance Program (CHIP) requirements; creating...
WEBINARS FROM THE FIELD (Washington Update, November 30, 2018)
Medicaid Managed Long-term Services and Supports Programs for Children and Youth with Special Health Care Needs Tuesday, December 4, 3:00-4:00 pm ET National Academy for State Health Policy Live webcast: Being Seriously Ill in the U.S.: Financial and Healthcare...
CONGRESS (Washington Update, November 30, 2018)
Outlook for the Rest of the Year A partial federal government “shut-down” is in the offing if Congress and the president have not reached an agreement on appropriations by the December 7 expiration date of a “continuing resolution” now funding seven federal...
MEDICAID/CHIP NEWS, INFORMATION, AND RESOURCES (Washington Update, November 30, 2018)
Updates on Core Sets of Children’s and Adults’ Health Quality Measures for Medicaid and CHIP On November 20, the Centers for Medicare & Medicaid Services (CMS) released an informational bulletin that describes the 2019 updates to the core set of children’s health...
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